Skip to content

Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now.  LEARN MORE!

Blog

NAF Announces New Ataxia Centers of Excellence Program

In our continued commitment to improving clinical care and accelerating treatment development, we’re proud to announce NAF’s new Ataxia Centers of Excellence (ACE) designation! The ACE program will recognize exceptional centers providing comprehensive care and services for individuals affected by Ataxia and their families. In addition to providing expert clinical Read More…

NAF Announces First International Site for the CRC-SCA

We’re excited to announce the first international site for the Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA) natural history study! NAF is proud to partner with Ataxia Canada and the Centre hospitalier de l’Université de Montréal in Montreal, Québec to provide the Ataxia community with a new Read More…

The Difference Between Observational and Interventional Studies

There are two main categories of human clinical trials: (1) observational studies, and 2) interventional studies. Both types of clinical studies are essential to developing new therapies for rare diseases like Ataxia. There are multiple trials taking place right now for Ataxia. In this PrepRARE article, learn a little more Read More…

National Ataxia Foundation

NAF Recognizes the Gordon and Marilyn Macklin Foundation

In 2018, the Gordon and Marilyn Macklin Foundation and NAF partnered on a critical project for the Ataxia community: A relaunch of the Clinical Research Consortium for the Study of Cerebellar Ataxias, better known as the CRC-SCA Natural History Study. The CRC-SCA is an ongoing clinical study that aims to Read More…

National Ataxia Foundation

2022 NAF Funded Research

We’re excited to announce that NAF will award more than $850,000 in Ataxia research grants this year! This year’s funded projects will support research on 8+ genetic forms of Ataxia, from the most common to some of the rarest, as well as address shared disease pathways that could provide insights Read More…

All About Cerebral Spinal Fluid (CSF) Donation

DISCLAIMER: The information provided in this article is for informational use only. NAF encourages all readers to consult with their primary care provider, neurologist, or other healthcare provider about any advice mentioned. Deciding whether to donate cerebral spinal fluid (CSF) is a very personal, but impactful decision. In the video Read More…

NAF Hosts First Ataxia Clinical Training

We are thrilled to inform you of an NAF-sponsored annual program called Ataxia Clinical Training (ACT). ACT has been developed for clinician-scientists committed to improving the lives of patients and caregivers affected with Ataxia. There is a shortage of well-trained specialists who are knowledgeable about clinical and scientific aspects of Read More…

NAF Welcomes Four New Board Members

As a non-profit organization, NAF’s strategic vision is lead by our Board of Directors. They are a dynamic group of individuals that volunteer their time and resources to guide NAF towards its mission of accelerating the development of treatments and a cure while working to improve the lives of those Read More…

Protect Yourself from Scams on Social Media

The NAF Facebook Group was established as a support group and social network for people with Ataxia, including their families, friends, caregivers, and anyone affected by Ataxia. With any social network, there is a risk of encountering scammers and spammers. We’d like to provide you with some information about how Read More…

Translate »

Join the Ataxia community today!

Become a free member for exclusive content from NAF.