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Back in October of 2024 I was managing a hotel restaurant and came down 2 steps and just kept going without the ability to stop. I finally slammed into a stone wall and sank to the floor. I knew that in the back of my mind I was thinking that Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Molecular mechanisms and consequences of Purkinje Read More…
I spent 10 yrs with a Dr who thought I had MS. After a visit to Mayo clinic in MN, I was told no MS, probable CANVAS. I was put on long term disability from my job as soon as I started walking with a bad gait. In the refinery Read More…
Written by Celeste Suart Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: A CAG expansion-selective small molecule screen Read More…
Oh boy, where do I start? At the beginning I guess…following neck surgery I developed a 4cm abscess on my left prefrontal cortex. I had no symptoms of this abscess until it ruptured. I thought someone shot me in the head. Things get very hazy after this…I remember light hurting Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project titles: Research Seed Money Grant (2023-2024): “Mapping Read More…
I am from Venezuela, South America, I am 24 years old and living a “normal life” studying at university. My Ataxia is quite rare. I got sick 5 years ago, something viral that later turned into something neurological, many tests and still no exact diagnosis. I know it affected my Read More…
Written by Celeste Suart, PhD. Edited by the National Ataxia Foundation Research Team Our annual Katie Campbell CRC-SCA Face-to-Face Meeting was held this year from November 10-12, in Bloomington, Minnesota. This meeting focused on logistics and discussion of the ongoing Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA) Natural History Study. The CRC-SCA is Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Diverse Scientists in Ataxia Predoctoral Fellowship Read More…
My name is Cameron Dingerson, and I have a rare form of spinocerebellar ataxia: SCA11. The impetus for me sharing my story is the upcoming premiere of The Thirteenth Olympian, which is an original musical theater production solely written by myself and developed over the past seven years. The Thirteenth Read More…
