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I was a high school baseball coach for 25 seasons and had a successful 20 years in as the Public Address announcer for all the programs football and basketball games – both boys and girls. About five years ago, I sold my lucrative Financial Planning practice of 33 years and Read More…
Guest Author: Ellie Martin Tai Chi is an ancient Chinese martial art that has been around for thousands of years and has evolved into a practice focused on enhancing balance, harmony, and well-being. Tai Chi consists of a series of slow, flowing movements that are performed with deep breathing and Read More…
I was correctly diagnosed with genetic Spinal Cerebellar Ataxia in my early 30’s. Although I have been feeling the effects since my late teens (Not sure which SCA number). As time passes, it’s becoming increasingly difficult to perform routine tasks. My legs and hands have become increasingly weaker. I have Read More…
This past January I woke up with balance issues. Within a week I was using a cane. In June, my neurologist diagnosed me as having sensory ataxia. My condition seems to have progressed rather rapidly! During the past seven months, I have struggled when standing and walking. When I sit Read More…
Guest Author: Karen Winston Exploring the great outdoors has never been more accessible! Karen shares a fantastic opportunity that’s perfect for those eager to immerse themselves in nature. Learn about the free all-terrain wheelchair program available in many state parks across the United States. These specially designed Action Trackchairs are Read More…
Guest Author: Ellie Martin Ellie, who has Cerebellar Ataxia, tried out the BoBo Core Training Balance Board and shared her experience. The interactive balance board pairs with a versatile app to offer an experience that is different from traditional exercise equipment. Check out her review of this unique fitness tool… Read More…
In medical school, one of my professors told me I had a gait disorder. I told him, “No I don’t!” Well, he was right of course. 20 years or so later I found myself unable to run, and gradually noticed weakness in my quads and legs, and eventually a very Read More…
Guest Author: Linda Chase, Able Hire Owning a business is a dream that many people have, including those with disabilities. While the journey may have its challenges, there are plenty of resources and strategies to help make this dream a reality. This blog post will explore practical tips and inspiring Read More…
Session focused on the importance of funding research and approving new treatments for rare diseases, especially those with no FDA-approved treatment options like Spinocerebellar Ataxia (SCA) Minneapolis, MN (November 19, 2024) – Today the National Ataxia Foundation (NAF) partnered with members of Congress to host an informational meeting for legislators, Read More…
Hi I am a 62-year-old Indian male living in New Delhi, India. My discovery of Ataxia was quite by accident. I suffer from Essential Tremors and the doctor suggested a gene test about 15 years back. The SCA 12 gene was dominant, but since it was more an ET diagnosis, Read More…
