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2022 AAC Goes Virtual

The health and safety of our community is our number one priority at NAF. We wanted to let you know that we are pivoting to a completely virtual 2022 Annual Ataxia Conference. We will no longer offer an in-person option. While we’re very disappointed that we do not get to Read More…

Highlighted Researcher: Felicia Williams

NAF is proud to feature Felicia Williams as a recipient of NAF’s 2020 Diverse Scientists in Ataxia Pre-Doctoral Research Fellowship. Felicia developed a new method to identify genes that suppress protein clumping.  Bio: Felicia Williams graduated from the University of Georgia in 2019 where she studied genetics and biotechnology. Here Read More…

National Ataxia Foundation

Clinical Trial Phases

Let’s chat about Clinical Trial Readiness with a focus on Ataxia. Clinical trials ensure that treatments are safe and effective before they gain approval for widespread use in humans. Clinical trials test new treatments and therapies including: new drugs, different use for an already approved drug, medical devices, new treatment/therapy Read More…

National Ataxia Foundation

NAF Begins Search for Chief Scientific Officer

We’re excited to announce the launch of a search for NAF’s first Chief Scientific Officer. This exciting role is new for NAF and will be instrumental in shaping our research funding strategy and deepening our rapidly expanding partnerships in the pharmaceutical space. The Ataxia community is at a pivotal moment Read More…

2021 United Against Ataxia Hill Day

NAF, FARA, and more than 100 volunteer advocates will come together to raise awareness about Ataxia and supporting legislation that directly impacts our community.  The third United Against Ataxia Hill Day will be held on Wednesday, September 29, 2021. Ataxia advocates will speak to their Congressional Members to make the Read More…

Placebo-Controlled Trials

What does a placebo mean? A placebo is a simulated substance that has no therapeutic effect or active ingredients. Often, a placebo looks, feels, and tastes like other therapies being tested in the clinical trial. What is the placebo effect, and why is it important? https://www.youtube.com/watch?v=5RhG_ySxhDA Why are placebo-controlled trials Read More…

National Ataxia Foundation

Nothing About Us Without Us

Author: Sue Hagen, Research Services Director I recently attended the virtual annual meeting of the Drug Information Association. I took in four days of sessions, all relating to topics of interest to all stakeholders involved in drug discovery and development. My head is still spinning! While you would think that Read More…

Informed Consent

Informed Consent Forms

What is an Informed Consent Form (ICF)? Informed Consent Forms are important aspect of a clinical trial. An ICF is a document that provides a potential clinical trial participant information about the clinical trial and any risks there may be in participating. The goal behind the ICF is to present Read More…

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