Webinar
Calendar of Events
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All About SCA14
All About SCA14
CENTRAL TIME ZONE During this webinar, two experts will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia Type 14 (SCA14), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Speaker Information Dong-Hui Chen, MD,
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Ask the Ataxia Expert
Ask the Ataxia Expert
CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_H6YG5LgfQEyZc4zgz_4Dzw Please do not submit questions
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PrepRARE: CRC-SCA Natural History Study Information Panel
PrepRARE: CRC-SCA Natural History Study Information Panel
CENTRAL TIME ZONE Have you ever wondered what it is like to participate in an Ataxia natural history study? This type of research study collects data about how specific types of Ataxia progress over time. Come learn about the CRC-SCA Natural History Study! This panel will feature current study participants and clinical research coordinators. They
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NAF Science Showcase: Dr. Hannah Shorrock
NAF Science Showcase: Dr. Hannah Shorrock
CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hannah Shorrock will present the research, "A CAG expansion selective small molecule screen for multiple spinocerebellar ataxias." Register for Webinar: Click here. Research Lay Summary: The spinocerebellar ataxias (SCAs) are a group of dominantly inherited neurodegenerative
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All About Ataxia Caused by Stroke
All About Ataxia Caused by Stroke
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at ataxia caused by stroke, including the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research. Register: Click here. Speaker Information Jeremy Schmahmann, MD, FAAN, FANA, FANPA; Senior Clinical Neurologist Massachusetts General
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Chair Yoga for Ataxia
Chair Yoga for Ataxia
CENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
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All About SYNE1 Ataxia
All About SYNE1 Ataxia
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SYNE1 Ataxia, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. SYNE1 Ataxia can be referred to as any one of
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