All About SYNE1 Ataxia

Zoom Webinar

CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SYNE1 Ataxia, the typical diagnostic journey for those affected,

FREE

NAF Science Showcase: Jacques P. Tremblay, PhD

Zoom Webinar

CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Jacques P. Tremblay, will present the research, "Development of a

FREE

All About AOA

Zoom Webinar

CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Ataxia with Oculomotor Apraxia (AOA1, AOA2, and AOA4), the

FREE

NAF Science Showcase: Dr. Maimuna Sali Paul

Zoom Webinar

CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Maimuna Sali Paul will present the research, "Molecular and cellular

FREE

Support for Parents of Adult Children

Zoom Webinar

CENTRAL TIME ZONE In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover

FREE

All About SCA12

Zoom Webinar

CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia type 12 (SCA12), the typical diagnostic journey

FREE

Ask the Ataxia Expert

Zoom Webinar

CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without

FREE

Chair Yoga for Ataxia

Zoom Webinar

CENTRAL TIME For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering

FREE

NORD: Alone we are rare. Together we are strong®

Zoom Webinar

CENTRAL TIME ZONE NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, they elevate care, advance research, and

FREE