Calendar of Events
|
Monday
|
Tuesday
|
Wednesday
|
Thursday
|
Friday
|
Saturday
|
Sunday
|
|---|---|---|---|---|---|---|
|
1 event,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Clinical Trials Group Discussion |
0 events,
|
1 event,
-
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Description of program: · A virtual group exercise program focusing primarily on balance and movement coordination. (Exercises will be primarily in sitting with options for standing tasks pending |
0 events,
|
5 events,
-
CENTRAL TIME Many forms of Ataxia are caused by damage to the Cerebellum. This is the part of your brain that controls balance, coordination, and other complex tasks. In this session, we will take a deep dive into what the cerebellum is, how it works, and its structure. Register Now: https://us02web.zoom.us/webinar/register/WN_5PUSZre-TaGMwbS4E0k7XQ
FREE
-
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86297331619?pwd=NEI4OHhxM1JVZ0hseWg1TmR5b2o4UT09 Meeting ID: 862
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This meeting we will be
FREE
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID: |
2 events,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting Location: Discovery Village at Deerwood
FREE
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet the first Saturday of
FREE
|
0 events,
|
|
3 events,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Tech Tips and Celebrating
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
FREE
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: Join Zoom Meeting
FREE
|
1 event,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Though we are grateful for |
3 events,
-
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Description of program: · A virtual group exercise program focusing primarily on balance and movement coordination. (Exercises will be primarily in sitting with options for standing tasks pending
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our support group meetings
-
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Google Meets Link: https://meet.google.com/mos-mrcr-eyw |
1 event,
-
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
FREE
|
3 events,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
FREE
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
FREE
|
6 events,
-
EASTERN TIME ZONE The Tampa Bay Walk N' Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and
FREE
-
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information https://us06web.zoom.us/j/86345340080?pwd=Eykz4U2GqBubxqreqSaBKA5EH7aUxQ.1 The meeting number is
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom: Join Zoom Meeting https://us05web.zoom.us/j/87313223660?pwd=W0utVQsu6QpWftru4Pb1d99dFj8cU9.1
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Register in advance for this
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the second |
1 event,
-
Mountain Standard Time Zone Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Join us for an informational meeting about |
|
1 event,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Resource Information on PT |
1 event,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://jhjhm.zoom.us/j/93492624629 Contact |
1 event,
-
CENTRAL TIME ZONE One of the common questions we get asked at NAF is why mice are used for ataxia research. If you have ever wondered about this, then this webinar is for you! In this session, we will discuss what information mice can tell us about ataxia and how these findings can be used
FREE
|
3 events,
-
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of ARSACS, the typical diagnostic journey for those affected, and what to expect for clinical care. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related
FREE
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information; Join Zoom Meeting https://us06web.zoom.us/j/85003567488?pwd=0QCaKjfMmnSAnaKFx5omrX6EdEvo73.1 Meeting
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome those anywhere from |
2 events,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID: |
6 events,
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information People with a variety of
FREE
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Harmony Gardens in Maplewood https://www.harmonygardenssenior.org/
FREE
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Join Zoom Meeting https://us06web.zoom.us/j/84212772091?pwd=ztDgiiQNaCEy0JSe5RaNJv0XMDTEUe.1 Meeting
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
FREE
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom: Join Zoom Meeting https://us06web.zoom.us/j/86074454600?pwd=FCyy6NAJtnkaTuwfTgaeKjxgABp2Dm.1
-
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Description of program: · A virtual group exercise program focusing primarily on balance and movement coordination. (Exercises will be primarily in sitting with options for standing tasks pending |
1 event,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Reading Branch Library Conference Room
FREE
|
|
1 event,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: PRIME Study Results Host: |
1 event,
-
CENTRAL TIME ZONE Get connected to more resources provided by Global Genes and the Child Neurology Foundation. You will learn about the Child Neurology Foundation's Family Support Program is designed to help families with the emotional and social challenges of raising a child with complex healthcare needs. Through our Family Support Program, families can learn
FREE
|
7 events,
-
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Wednesday, February 19th at 1:00pm St
-
"Speech changes in ataxia" Wednesday, February 19 @ 1 pm ET via zoom Leyna Schroeder, M.S., CCC-SLP is a speech-language pathologist at Johns Hopkins University. Leyna will provide a presentation that includes defining speech changes in ataxia, describe the relationship between breathing and speech, and provide helpful strategies to promote efficient breath control
-
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Description of program: · A virtual group exercise program focusing primarily on balance and movement coordination. (Exercises will be primarily in sitting with options for standing tasks pending
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our support group meetings
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
FREE
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Zoom (link below) https://us02web.zoom.us/j/82112138698?pwd=g7Pl5TBNi3Hn4Wa1oTKt69SizyC2cX.1
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 7pm every
FREE
|
1 event,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are held on the third |
4 events,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet on the third
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID: |
2 events,
-
MOUNTAIN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information https://cuboulder.zoom.us/my/allisonhilger Contact Information Allison
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us06web.zoom.us/j/86961200049?pwd=y1w0XvWXIBtxb11dWPqVzNf03ebEpP.1 Meeting ID: |
0 events,
|
|
1 event,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Tracy Fleming, Healthcare Inclusion Specialist |
0 events,
|
2 events,
-
CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hübener-Schmid will present the research, "Development and Validation of a SIMOA-based mutant Ataxin-3 Immunoassay for biomarker studies in SCA3." Register: Click here. Research Lay Summary: Disease protein lowering are key therapeutic strategies for several neurodegenerative diseases including
FREE
-
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Description of program: · A virtual group exercise program focusing primarily on balance and movement coordination. (Exercises will be primarily in sitting with options for standing tasks pending |
3 events,
-
On select Thursdays there will be discussion-based presentations that foster social connectedness and promote overall health and well-being. Thursday, February 27 @ 3:00 pm (ET) "Benefits of positive affirmations" Register HERE to attend this presentation and engage in thoughtful discussion on the topic of positive affirmations. Your words have power! Positive affirmations can positively impact our mental,
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Zoom Join Zoom Meeting https://us06web.zoom.us/j/82538567177?pwd=T5OOwT7wLxuwE42hGnUZu6iVlN7EmW.1
FREE
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
FREE
|
5 events,
-
CENTRAL TIME ZONE During this session, our expert will teach us how Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay or ARSACS is studied and give an overview of the current state of research and drug development for the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important
FREE
-
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86297331619?pwd=NEI4OHhxM1JVZ0hseWg1TmR5b2o4UT09 Meeting ID: 862
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information his meeting will be led
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID: |
2 events,
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet the first Saturday of
FREE
-
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is I-NAC first support |
1 event,
-
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom: Join Zoom Meeting https://us06web.zoom.us/j/82397928853?pwd=wQGFiMeYWTHnSlvIaBr6JuQaJR3arU.1
FREE
|
