Calendar of Events
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2 events,
All About SCA28 and SPAX5
All About SCA28 and SPAX5
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia type 28 (SCA28) and Autosomal Recessive Spastic Ataxia type 5 (SPAX5), the typical diagnostic journey for those affected, and what to expect for clinical care. Anyone with symptoms caused by mutations in
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Travel Adventures Host: Group
0 events,
0 events,
1 event,
Coffee Chat for Parents
Coffee Chat for Parents
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
3 events,
North Carolina Triangle Support Group
North Carolina Triangle Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
Global Support Group (Hope for Ataxia) Meeting – 1st Session
Global Support Group (Hope for Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) Meeting – 2nd Session
Global Support Group (Hope for Ataxia) Meeting – 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
2 events,
Ataxia Alliance of Northwest Florida
Ataxia Alliance of Northwest Florida
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet the first Saturday of
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is I-NAC first support
0 events,
4 events,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Tech Tips and Celebrating
Boston Support Group Meeting
Boston Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
Louisiana Support Group Meeting
Louisiana Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: Join Zoom Meeting
Louisiana Support Group Meeting
Louisiana Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: Join Zoom Meeting
1 event,
55+ (Just us Ataxians) Support Group Meeting
55+ (Just us Ataxians) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Though we are grateful for
1 event,
Northwestern Washinton Yeitis Support Group
Northwestern Washinton Yeitis Support Group
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Google Meets Link: https://meet.google.com/mos-mrcr-eyw Christina's
3 events,
Western Michigan Support Group Meeting
Western Michigan Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information; Join Zoom Meeting https://us06web.zoom.us/j/85003567488?pwd=0QCaKjfMmnSAnaKFx5omrX6EdEvo73.1 Meeting
The Dakotas Support Group
The Dakotas Support Group
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome those anywhere from
Under 30 with Ataxia Support Group Meeting
Under 30 with Ataxia Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our support group meetings
2 events,
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
6 events,
Los Angeles Support Group Meeting
Los Angeles Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information In Person Picnic- More info
St. Louis Support Group Meeting
St. Louis Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
North Texas Support Group Meeting
North Texas Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom: Join Zoom Meeting https://us06web.zoom.us/j/82397928853?pwd=wQGFiMeYWTHnSlvIaBr6JuQaJR3arU.1
Treasure Coast Support Group
Treasure Coast Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Register in advance for this
Kansas City Support Group Meeting
Kansas City Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the second
Greater Atlanta Support Group Meeting
Greater Atlanta Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information: ELIZABETH FOSS, OTR/L; LITTLE STEPS
0 events,
2 events,
All About Paraneoplastic Cerebellar Degeneration
All About Paraneoplastic Cerebellar Degeneration
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Paraneoplastic Cerebellar Degeneration , the typical diagnostic journey for those affected, and what to expect for clinical care. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Any Topic Host: Linda
1 event,
Johns Hopkins Support Group Meeting
Johns Hopkins Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://jhjhm.zoom.us/j/93492624629 Contact
2 events,
Chair Yoga & Mobility for Ataxia
Chair Yoga & Mobility for Ataxia
CENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
Parents With Ataxia Support Group Meeting
Parents With Ataxia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: https://us06web.zoom.us/j/88930080368?pwd=s2naZrRI2IuqyaTvPEZPj0ZWUdPkWX.1 Contact Information
3 events,
Richmond Support Group Meeting
Richmond Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are held on the third
Finger Lakes Support Group Meeting
Finger Lakes Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Zoom Join Zoom Meeting https://us06web.zoom.us/j/82538567177?pwd=T5OOwT7wLxuwE42hGnUZu6iVlN7EmW.1
Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
Spouses and Partners of Loved Ones with Ataxia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This group is for spouses
3 events,
Connecticut Support Group Meeting
Connecticut Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet on the third
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
5 events,
Northern Nevada Support Group Meeting
Northern Nevada Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Los Altos Breakfast and Lunch
Ataxia Connection (Nebraska & Iowa) Support Group Meeting
Ataxia Connection (Nebraska & Iowa) Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information May 17 – Link between
Boston Support Group Meeting
Boston Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Outing to Castle Island in
Western Washington Support Group Meeting
Western Washington Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Information Coming Soon Contact
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is I-NAC first support
2 events,
Ataxia Awareness Las Vegas Support Group Meeting
Ataxia Awareness Las Vegas Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We don’t have a guest
Cincinnati Support Group Meeting
Cincinnati Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Reading Branch Library Conference Room
1 event,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Day 1 of sitting
1 event,
Introduction to Disability Services and Financial Planning
Introduction to Disability Services and Financial Planning
CENTRAL TIME ZONE Join us for an introductory webinar designed to help individuals and families understand the essential aspects of disability services and financial planning. Whether you are navigating the complexities of disability benefits or preparing for long-term financial stability, this session will provide you with the knowledge and resources you need to make informed
4 events,
Western NY Support Group Meeting
Western NY Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
Under 30 with Ataxia Support Group Meeting
Under 30 with Ataxia Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our support group meetings
Parents of Kids with Ataxia Support Group
Parents of Kids with Ataxia Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Zoom (link below) https://us02web.zoom.us/j/82112138698?pwd=g7Pl5TBNi3Hn4Wa1oTKt69SizyC2cX.1
Canada Support Group Meeting
Canada Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 7pm every
1 event,
Lower Michigan Support Group
Lower Michigan Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
2 events,
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
2 events,
Twin Cities Support Group Meeting
Twin Cities Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Harmony Gardens in Maplewood https://www.harmonygardenssenior.org/ Zoom
African Americans with Ataxia Support Group
African Americans with Ataxia Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information For meeting access information, contact
0 events,
1 event,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Show and Tell Host:
0 events,
0 events,
1 event,
PrepRARE: A Day in the Life – Inside the Research Participant Experience at Weill Cornell Medicine
PrepRARE: A Day in the Life – Inside the Research Participant Experience at Weill Cornell Medicine
CENTRAL TIME ZONE Thinking about joining a clinical trial but unsure what it really involves? The Weill Cornell Medicine Department of Genetic Medicine team will take you behind the scenes and give you an inside look at the research participant experience, with a focus on their Friedreich’s Ataxia (FA) gene therapy trial. Their expert coordinator
4 events,
Western North Carolina Support Group Meeting
Western North Carolina Support Group Meeting
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86297331619?pwd=NEI4OHhxM1JVZ0hseWg1TmR5b2o4UT09 Meeting ID: 862
All About Acute Cerebellar Ataxia
All About Acute Cerebellar Ataxia
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at Acute Cerebellar Ataxia, including the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research. Acute Cerebellar Ataxia is a form of Ataxia caused by a previous infection in the cerebellum
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
