Events
Calendar of Events
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2 events,
Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. This is a virtual event to connect patients with the FDA. There will be panels discussing topics related to patient-focused work being done at FDA and opportunities
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Zoom Link: Invite Link https://us02web.zoom.us/j/88527510609?pwd=uHkFCUenBHVh4GzKi829Hh2hdt2BIR.1 meeting I.D.: |
1 event,
The Annual Rare Disease Week on Capitol Hill brings together advocates united by one goal: driving change for the rare disease community. As individuals living with rare diseases, we understand the power of advocacy and the impact we can make when we raise our voices together. Learn more: https://everylifefoundation.org/rare-advocates/rare-disease-week/ |
3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Social Talk 
CENTRAL TIME ZONE The National Ataxia Foundation is proud to sponsor the continuation of the Let’s Move Exercise and Wellness Program, a virtual series hosted by Johns Hopkins University. This engaging group program is designed for people with movement disorders, focusing on balance, core strength, and movement coordination in a safe, supportive environment. Most exercises
FREE
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2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Lisa is setting up a |
6 events,
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Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. Rare Disease Day at NIH will be held at NIH Main Campus (Natcher Conference Center) on Friday, Feb. 27, 2026, from 9 a.m. to 5 p.m. EST.
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CENTRAL TIME ZONE During this webinar, an expert will take a look at the causes and symptoms of All About SCA 17, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia
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EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/84592263803?pwd=3udfXCEvkIjZn6SsxSn38wa6lZ91MF.1 Contact
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Contact the Support Group Leader
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Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with
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Global Support Group (Hope for Ataxia) - 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with |
5 events,
Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. Rare Disease Day is an opportunity for the global rare disease community to come together to raise awareness of our shared experiences and to highlight community stories.
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information For meeting access information, contact
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MOUNTAIN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please join us for our
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is the Spanish
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information: Mardi Gras Party SATURDAY, February 28th |
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2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Location: Zoom https://us06web.zoom.us/j/7647744197?pwd=LKJZxmfQYLHMkREiIbKBzIHdeFSpm3.1&omn=89563619942 Meeting ID: 764 774 4197 |
1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Though we are grateful for |
3 events,
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CENTRAL TIME ZONE This session explores the role of genetic counseling in understanding Ataxia. We’ll cover how genetic counseling differs from genetic testing, the training genetic counselors receive, and how they can help explain genetic test results—even if testing was done years ago or through another provider. You’ll also learn how genetic counseling can offer
CENTRAL TIME ZONE The National Ataxia Foundation is proud to sponsor the continuation of the Let’s Move Exercise and Wellness Program, a virtual series hosted by Johns Hopkins University. This engaging group program is designed for people with movement disorders, focusing on balance, core strength, and movement coordination in a safe, supportive environment. Most exercises
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Celebrating March Birthdays, ataxia |
0 events,
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3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
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Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with
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Global Support Group (Hope for Ataxia) - 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with |
1 event,
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EASTERN TIME ZONE The Treasure Coast Walk N' Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event! Start a Team or Donate: Click here. Event Information 9 am -
FREE
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1 event,
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information https://us06web.zoom.us/j/4170430276 Contact Information Howard Silverman |
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0 events,
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1 event,
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://jhjhm.zoom.us/j/93492624629 Contact |
3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Social Talk
CENTRAL TIME ZONE The National Ataxia Foundation is proud to sponsor the continuation of the Let’s Move Exercise and Wellness Program, a virtual series hosted by Johns Hopkins University. This engaging group program is designed for people with movement disorders, focusing on balance, core strength, and movement coordination in a safe, supportive environment. Most exercises
FREE
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Google Meets Link: https://meet.google.com/mos-mrcr-eyw |
2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information; Join Zoom Meeting https://us06web.zoom.us/j/85003567488?pwd=0QCaKjfMmnSAnaKFx5omrX6EdEvo73.1 Meeting
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CENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs – |
2 events,
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Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with
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Global Support Group (Hope for Ataxia) - 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with |
5 events,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom: Join Zoom Meeting https://us06web.zoom.us/j/82397928853?pwd=wQGFiMeYWTHnSlvIaBr6JuQaJR3arU.1
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Join Zoom Meeting https://us02web.zoom.us/j/83420239730?pwd=VhggvZVssWbGdnlVwh4wTTfkvDbzlE.1 Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the second
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our monthly meeting will be |
1 event,
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us06web.zoom.us/j/4170430276#success Contact |
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Location: Zoom https://us06web.zoom.us/j/7647744197?pwd=LKJZxmfQYLHMkREiIbKBzIHdeFSpm3.1&omn=89563619942 Meeting ID: 764 774 4197 |
0 events,
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5 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Yoga Therapy with a
CENTRAL TIME ZONE The National Ataxia Foundation is proud to sponsor the continuation of the Let’s Move Exercise and Wellness Program, a virtual series hosted by Johns Hopkins University. This engaging group program is designed for people with movement disorders, focusing on balance, core strength, and movement coordination in a safe, supportive environment. Most exercises
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our support group meetings are
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 7pm every |
1 event,
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are held on the third |
4 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet on the third
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CENTRAL TIME ZONE Join us for Cooking with Troy, a fun and inclusive webinar series led by Chef Troy Stewart, a professional chef living with Gluten Ataxia. Whether you're a beginner or a seasoned home cook, these sessions are designed to help people of all ability levels feel more confident and independent in the kitchen.
FREE
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Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with
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Global Support Group (Hope for Ataxia) - 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with |
5 events,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information “Birds of a Feather” – During
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Harmony Gardens in Maplewood https://www.harmonygardenssenior.org/
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Join Zoom Meeting https://us06web.zoom.us/j/84212772091?pwd=ztDgiiQNaCEy0JSe5RaNJv0XMDTEUe.1 Meeting
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information https://us02web.zoom.us/j/87277663500?pwd=UxwpzRMqyNDMsIUKhS1tQtzBlWi65x.1 Contact Information: Eunice Cosentino Email: |
1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Old Worthington Library 820 High |
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3 events,
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Information Join at:
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CENTRAL TIME ZONE During this webinar, experts will discuss Ataxia with Vitamin E Deficiency (AVED) the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into these disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics
CENTRAL TIME ZONE The National Ataxia Foundation is proud to sponsor the continuation of the Let’s Move Exercise and Wellness Program, a virtual series hosted by Johns Hopkins University. This engaging group program is designed for people with movement disorders, focusing on balance, core strength, and movement coordination in a safe, supportive environment. Most exercises
FREE
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1 event,
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CENTRAL TIME ZONE During this webinar, experts will discuss SCA36, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into this disease. Register: Click here Other Webinars NAF hosts educational webinars about Ataxia presented by industry experts. Learn about important topics related to living with Ataxia. |
3 events,
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/84592263803?pwd=3udfXCEvkIjZn6SsxSn38wa6lZ91MF.1 Contact
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Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with
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Global Support Group (Hope for Ataxia) - 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with |
2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information: Meeting Location: Zoom information
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information For meeting access information, contact |
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1 event,
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Information Join at: |
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3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
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Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with
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Global Support Group (Hope for Ataxia) - 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with |
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting Location: Discovery Village at Deerwood |
