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Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Share Your Story. Strengthen Our Voice.

Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.

Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF Blog

Recent Articles

Recent Member Stories

Marina Parker

Oh boy, where do I start? At the beginning I guess…following neck surgery I developed a 4cm abscess on my left prefrontal cortex. I had Read More…

Freyglee Borges

I am from Venezuela, South America, I am 24 years old and living a “normal life” studying at university. My Ataxia is quite rare. I Read More…

Cameron Dingerson

My name is Cameron Dingerson, and I have a rare form of spinocerebellar ataxia: SCA11. The impetus for me sharing my story is the upcoming Read More…

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Valentina

Todo empezó a los 9 años cuando estaba en el colegio y la profesora y mi mamá se empezaron a dar cuenta que levantaba los Read More…

What Is Ataxia?

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EVENTS

Dec 26, 2025 01:00 pm - 02:30 pm
Western North Carolina Support Group Meeting

EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led Read More…

Dec 26, 2025 03:00 pm - 05:00 pm
Global Support Group (Hope for Ataxia) 1st Session

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Dec 26, 2025 06:00 pm - 08:00 pm
Global Support Group (Hope for Ataxia) 2nd Session

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Dec 29, 2025 01:00 pm - 02:00 pm
Ataxia Resources and Discussion Support Group Meeting

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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