Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW
Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW
As a registered attendee, you have access to rewatch both days of the conference whenever you’d like! Please do not share these links publicly. We will release the sessions to non-attendees later in the year.
Click a session title below to download the slides presented for that session.
All times listed are PT.
8:30 AM – Daily Welcome
Speakers: Andrew Rosen, Joel Sutherland, & Dana Mauro
9:00 AM – Newly Diagnosed & Prepping for a Neurologist Visit
Speaker: Odinachi Oguh, MD
10:30 AM – Adaptive Tai Chi
Instructor: Jennifer Keller, PT, MS
11:00 AM – Rhythmic Rehabilitation
Instructor: Julie Renato, MM, LPMT, MT-BC
1:30 PM – Medications & Diet
Speaker: Susan Perlman, MD
2:00 PM -Assistive Technology & Strategies to Mitigate Speech & Swallowing Impairments in Ataxia
Speaker: Caitlin Cloud, MA, CCC-SLP
3:00 PM – Adaptive Tai Chi
Instructor: Jennifer Keller, PT, MS
3:30 PM – Rhythmic Rehabilitation
Instructor: Julie Renato, MM, LPMT, MT-BC
All times listed are PT.
8:30 AM – Daily Welcome
Speakers: Joel Sutherland & Dana Mauro
8:35 AM – Drug Development and Moving Science Forward in Rare Disease
Speaker: Robin Avila, PhD
8:45 AM – Accessing Local Resources
Speakers: Sandi Brettler, MSN, RN, CNRN, CCRN
9:15 AM – Cognition & Mood in Ataxia
Speakers: Lucille Carriere, PhD & Shehroo Budumjee, PhD
10:15 AM – Occupational Therapy & the Treatment of Ataxia: The Road to Independence
Speaker: Madisen Redar, MOT, OTR/L
11:00 AM – Rehabilitation Strategies & Mobility Devices
Speaker: Kayla Kotake, PT, DPT
1:00 PM – Panel Discussion: Living with Ataxia
Facilitator: Celeste Suart, PhD – Panelists: Kyle Bryant, Daniel Gavern, & Ellie Martin
1:45 PM – Genetic Testing: Arriving at the End of the Diagnostic Odyssey
Speakers: Meron Azage, MS, CGC & Mary Hogan, MS, MPH
3:00 PM – Research Update
Speaker: Lauren Moore, PhD
3:45 PM – How We Win This Battle & Defeat Ataxia
Speakers: Andrew Rosen, Joel Sutherland, Jon Wegman, Meg Hanna, & Rich McCutchen
4:15 PM-Closing Remarks/Awards Ceremony
Speakers: Dana Mauro & Andrew Rosen, with Guest Speaker – Bill Nye
7:00 PM – Keynote Speaker: Jacob Thompson
The following companies, organizations, or institutions will have exhibit booths at the in-person event. Click the logo to visit their website to learn more about them.
University of Nebraska-Lincoln – Sensorimotor Integration for Swallowing and Communication Lab
Thank you to our sponsors who supported this event!
