Your donation DOUBLED through April 30 thanks to anonymous donors who pledged to match your gift! DONATE NOW!
Your donation DOUBLED through April 30 thanks to anonymous donors who pledged to match your gift! DONATE NOW!
As a registered attendee, you have access to rewatch both days of the conference whenever you’d like! Please do not share these links publicly. We will release the sessions to non-attendees later in the year.
Click a session title below to download the slides presented for that session.
All times listed are PT.
8:30 AM – Daily Welcome
Speakers: Andrew Rosen, Joel Sutherland, & Dana Mauro
9:00 AM – Newly Diagnosed & Prepping for a Neurologist Visit
Speaker: Odinachi Oguh, MD
10:30 AM – Adaptive Tai Chi
Instructor: Jennifer Keller, PT, MS
11:00 AM – Rhythmic Rehabilitation
Instructor: Julie Renato, MM, LPMT, MT-BC
1:30 PM – Medications & Diet
Speaker: Susan Perlman, MD
2:00 PM -Assistive Technology & Strategies to Mitigate Speech & Swallowing Impairments in Ataxia
Speaker: Caitlin Cloud, MA, CCC-SLP
3:00 PM – Adaptive Tai Chi
Instructor: Jennifer Keller, PT, MS
3:30 PM – Rhythmic Rehabilitation
Instructor: Julie Renato, MM, LPMT, MT-BC
All times listed are PT.
8:30 AM – Daily Welcome
Speakers: Joel Sutherland & Dana Mauro
8:35 AM – Drug Development and Moving Science Forward in Rare Disease
Speaker: Robin Avila, PhD
8:45 AM – Accessing Local Resources
Speakers: Sandi Brettler, MSN, RN, CNRN, CCRN
9:15 AM – Cognition & Mood in Ataxia
Speakers: Lucille Carriere, PhD & Shehroo Budumjee, PhD
10:15 AM – Occupational Therapy & the Treatment of Ataxia: The Road to Independence
Speaker: Madisen Redar, MOT, OTR/L
11:00 AM – Rehabilitation Strategies & Mobility Devices
Speaker: Kayla Kotake, PT, DPT
1:00 PM – Panel Discussion: Living with Ataxia
Facilitator: Celeste Suart, PhD – Panelists: Kyle Bryant, Daniel Gavern, & Ellie Martin
1:45 PM – Genetic Testing: Arriving at the End of the Diagnostic Odyssey
Speakers: Meron Azage, MS, CGC & Mary Hogan, MS, MPH
3:00 PM – Research Update
Speaker: Lauren Moore, PhD
3:45 PM – How We Win This Battle & Defeat Ataxia
Speakers: Andrew Rosen, Joel Sutherland, Jon Wegman, Meg Hanna, & Rich McCutchen
4:15 PM-Closing Remarks/Awards Ceremony
Speakers: Dana Mauro & Andrew Rosen, with Guest Speaker – Bill Nye
7:00 PM – Keynote Speaker: Jacob Thompson
The following companies, organizations, or institutions will have exhibit booths at the in-person event. Click the logo to visit their website to learn more about them.
University of Nebraska-Lincoln – Sensorimotor Integration for Swallowing and Communication Lab
Thank you to our sponsors who supported this event!
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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