Webinar
Chair Yoga for Ataxia
Zoom WebinarCENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is
All About SYNE1 Ataxia
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SYNE1 Ataxia, the typical diagnostic journey for those affected,
NAF Science Showcase: Jacques P. Tremblay, PhD
Zoom WebinarCENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Jacques P. Tremblay, will present the research, "Development of a Gene Therapy Approach for Friedreich's Ataxia by Deletion of GAA Expansion in the Frataxin Gene." Register: Click here. Research Lay Summary: Friedreich ataxia is due to
All About AOA
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Ataxia with Oculomotor Apraxia (AOA1, AOA2, and AOA4), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Speaker Information
NAF Science Showcase: Dr. Maimuna Sali Paul
Zoom WebinarCENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Maimuna Sali Paul will present the research, "Molecular and cellular mechanisms in EBF3-related cerebellar ataxias and neurodevelopmental disorders." Register: Click here. Research Lay Summary: Ataxia is a common neurological condition in which a person has impaired
Support for Parents of Adult Children
Zoom WebinarCENTRAL TIME ZONE In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover a supportive community, learn practical tips, and find strength in shared experiences, all aimed at enhancing your caregiving journey. Register: Click here. About the Care
CRC-SCA Natural History Study Canadian Information Panel / Table Ronde Canadienne Sur L’Étude D’Histoire Naturelle du CRC-SCA
Zoom WebinarCENTRAL TIME ZONE (Le français suit l'anglais) Have you ever wondered what it is like to participate in an ataxia natural history study? This type of research study collects data about how specific types of ataxia progress over time. Come learn about the CRC-SCA Natural History Study in Canada! This panel will feature a current
All About SCA12
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia type 12 (SCA12), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Speaker Information Russell Margolis,
Coffee Chat for Parents
ZoomCENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee
Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without
