Calendar of Events
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2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: “Crap that’s happened to
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
FREE
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Though we are grateful for
FREE
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2 events,
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CENTRAL TIME ZONE During this webinar, two experts will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia Type 14 (SCA14), the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Speaker Information Dong-Hui Chen, MD,
FREE
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EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
FREE
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1 event,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting Location: Jimmy Floyd Family Center
FREE
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3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86206829129?pwd=aEIrZ1laWVplbDdIYXJtQW11S2cwZz09 Meeting ID:
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86206829129?pwd=aEIrZ1laWVplbDdIYXJtQW11S2cwZz09 Meeting ID:
FREE
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0 events,
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0 events,
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: 4th year anniversary party
FREE
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://jhjhm.zoom.us/j/93492624629 Contact
FREE
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2 events,
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CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_H6YG5LgfQEyZc4zgz_4Dzw Please do not submit questions
FREE
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EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
FREE
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0 events,
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2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86206829129?pwd=aEIrZ1laWVplbDdIYXJtQW11S2cwZz09 Meeting ID:
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86206829129?pwd=aEIrZ1laWVplbDdIYXJtQW11S2cwZz09 Meeting ID:
FREE
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4 events,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Register in advance for this
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the second
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information April speaker (re-scheduled from February):
FREE
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2 events,
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Guest speaker: Austin Johnson, from
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/81955190420?pwd=dGpGM1FkaXNpSzNXTG4weHA3SXVNUT09 Contact
FREE
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2 events,
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CENTRAL TIME ZONE Have you ever wondered what it is like to participate in an Ataxia natural history study? This type of research study collects data about how specific types of Ataxia progress over time. Come learn about the CRC-SCA Natural History Study! This panel will feature current study participants and clinical research coordinators. They
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Recipes and cooking utensils
FREE
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0 events,
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3 events,
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EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 7pm every
FREE
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are held on the third
FREE
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2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
FREE
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6 events,
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Harmony Gardens in Maplewood https://www.harmonygardenssenior.org/
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are from 11am-1pm; lunch
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Penn State Hershey Medical Center's
FREE
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Guest Speaker: Dr. Alexandra Nelson,
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information For meeting access information, contact
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
FREE
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2 events,
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PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Google Meets Link: https://meet.google.com/wms-koqx-evb
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Reading Branch Library Conference Room
FREE
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Cognitive Issues Speaker: Dr.
FREE
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0 events,
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2 events,
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CENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hannah Shorrock will present the research, "A CAG expansion selective small molecule screen for multiple spinocerebellar ataxias." Register for Webinar: Click here. Research Lay Summary: The spinocerebellar ataxias (SCAs) are a group of dominantly inherited neurodegenerative
FREE
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EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
FREE
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0 events,
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4 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome Austin Johnson from
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is a support-only meeting.
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
FREE
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3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meeting Location: Discovery Village at
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information I look forward to seeing
FREE
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EASTERN TIME ZONE Immerse yourself in the captivating fusion of light and darkness at "Fairies and Shadows - A Performing Arts Party"! This event promises an evening of mesmerizing performances, from the graceful movements of fire dancers to the whimsical allure of bubbles, all set amidst a backdrop of costumes and mysterious shadows. Beyond the
$50
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2 events,
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MOUNTAIN STANDARD TIME ZONE The Denver Walk N' Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and improve the lives of people living with Ataxia. Join us for a fun event! Start a Team or Donate: Click here. Event Information Join us for
FREE
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CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Join us in person or
FREE
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1 event,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Sleep difficulties Speaker: n/a
FREE
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2 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
FREE
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CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at ataxia caused by stroke, including the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research. Register: Click here. Speaker Information Jeremy Schmahmann, MD, FAAN, FANA, FANPA; Senior Clinical Neurologist Massachusetts General
FREE
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2 events,
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CENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is offering this special Chair Yoga and Mobility online series for the global Ataxia community. This session is accessible for people in chairs and wheelchairs -
FREE
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EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics. Meeting Information Spring Music Therapy sessions run every Wednesday at 1pm for 8 weeks beginning on April 3. Only those that register in advance will be sent the link to join. Link to
FREE
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1 event,
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CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SYNE1 Ataxia, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. SYNE1 Ataxia can be referred to as any one of
FREE
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3 events,
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
FREE
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EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
FREE
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1 event,
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EASTERN TIME ZONE Join us for a night where humor meets heart, all in support of NAF! Get ready to crack up and contribute to improving the lives of people with Ataxia at our exclusive "Comedy for a Cause" evening. This isn't just any comedy night; it's your chance to laugh, cheer, and bid for
$100
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0 events,
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