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Resource Type: Guide/Handbook

Tools

Posted on July 3, 2025

Ataxia Tools Become an advocate. Your voice matters. ADVOCACY LEGISLATIVE ISSUES NAF INITIATIVES UPCOMING EVENTS JOIN US >> Your voice matters. Patients, families, and caregivers have the power to improve Read More…


Care Partners

Posted on January 29, 2024

Care Partners Support for those who provide care to loved ones with Ataxia. UPCOMING SESSIONS PAST CARE PARTNER WEBINARS COFFEE CHAT FOR PARENTS CARE PARTNER RESOURCES Care Partners have an Read More…


Ataxia Diagnosis

Posted on January 11, 2023

What to Do After Receiving an Ataxia Diagnosis Empower yourself with the knowledge to live better with Ataxia. BECOME A MEMBER>> Receiving a diagnosis of Ataxia can be overwhelming. Many Read More…


Protected: Resources

Posted on January 10, 2023

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AtaxiaPFDD

Posted on August 21, 2020

Externally-Led Patient-Focused Drug Development Meeting on Ataxia This is a recording of the meeting that was streamed live on September 25, 2020. Voice of the Patient Report The Voice of Read More…


Resources

Posted on May 27, 2020

CRC-SCA Resources Connecting those involved in Ataxia drug development. CRC-SCA HOMEPAGE PATIENTS AND FAMILIES ACADEMIC RESEARCH COMMUNITY INTERESTED INDUSTRY CRC-SCA SITE LOGIN >> You must be logged in to view Read More…


Advocacy

Posted on April 10, 2019

Advocacy Amplifying the voice of the Ataxia community ADVOCACY TOOLS LEGISLATIVE ISSUES NAF INITIATIVES UPCOMING EVENTS JOIN US >> Advocating for those affected by Ataxia is an important part of Read More…


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