NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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This a poem I wrote for Brian Oliveira my husband who passed away from complications associated with Spinocerabellar Ataxia Type 3 (SCA3). Dedicated to Brian OliveiraWritten by Sari Oliveira Imagine Read More…
Episodic Ataxia: The Invisible Impairment Often misdiagnosed, misunderstood, and unseen. A sufferer writes of a silver lining in his tale of swoon and gloom. by Timothy Wahl My childhood was Read More…
The following is a high-level overview of the Katie Campbell CRC-SCA Face-to-Face Meeting held from September 11-13, 2023, in Bloomington, Minnesota. This meeting focused on logistics and discussion of the Read More…
This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join as a professional member of Read More…
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