When I had my tinnitus investigated in 2007, a balance disorder was discovered. I was put in touch with a neurologist who suspected something called Ataxia. I have had poor balance my whole life and have had difficulty with certain games and sports. Music and art were my salvation. I learned to play the guitar and became really good at it. I have played guitar in several bands but now I play solo as a singer-songwriter.
When Were You Diagnosed? Which Type (If Known)?
2023 SCA-14. My now deceased sister and I were the first to be diagnosed with SCA-14 in Sweden.
How Has Ataxia Impacted Your Life?
Poor balance, motor skill issues in the right hand, and speech difficulties. But I can play the guitar really good.
Share Your Advice – How Can Others Support Someone with Ataxia?
Do not judge. Be patient.
Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
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