We want to tell you about an opportunity to participate in research that can improve clinical care for Ataxia!
Did You Know?
NAF actively recruits research participants for the natural history study on Ataxia, which is run by the Clinical Research Consortium for the Study of Cerebellar Ataxias (CRC-SCA). Their mission is to better understand factors that determine Ataxia progression to improve understanding of the disease process and help with developing treatments.
Why Should You Participate?
Some Ataxia research studies use data from the natural history study. These studies can help guide clinicians to improve their clinical care for Ataxia patients. Advancements in research to discover treatments and, ultimately, a cure for Ataxia, will only take place with active patient engagement in studies and trials.
Are You Eligible for the Natural History Study?
Individuals in the United States with a confirmed diagnosis of SCA 1, 2, 3, 6, 7, 8, or 10 are eligible to participate. The natural history study accepts people at any stage of the disease – including those who are diagnosed but are not yet experiencing symptoms. To find a site enrolling participants visit www.ataxia.org/crc-sca. To learn more about other opportunities to participate in research, visit www.ataxia.org/help-develop-new-treatments/.
Recent Research Using the Natural History Study
Thank you to the Ataxia community for your participation in research studies and clinical trials! It is essential to accelerate the development of treatments and search for a cure!