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Seth Johnson

I am 41 years old and currently live in Ashland, VA. I have SCA2. My Mom, Aunt, Grandfather and cousin all have or have had it as well.

I started to feel off earlier this year and knew what to get tested for because of my Mom. I can still trail run, ride a bike and work. But I have to admit they are getting more challenging.

I have found a lot of hope in joining the Ataxia community and look forward to the weekly webinars and meetings. I have also found that staying active and PT helps me both physically and mentally.

The best thing about this new diagnosis for me is the ability to focus on the things that really matter like family and friends.

I will continue to try and help with any studies I can and fundraising.

I still get down about my new situation but I just have to remember to think around the problem and find comfort in all the good that I have in my life.

Read Other Member Stories

Ewa Blonska

Hi! My name is Ewa 🙂 I live in a beautiful and green country – Poland. I am a recently diagnosed person whose story is Read More…

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Seth Johnson

I am 41 years old and currently live in Ashland, VA. I have SCA2. My Mom, Aunt, Grandfather and cousin all have or have had it Read More…

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Mary M.

Most of my career I lived in Texas and worked as a secretary.  After I retired, I moved to Maryland to be closer to relatives.  I’m Read More…

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Norman H

Norman Heryford

I have Ataxia and encephalitis; Spinocerebellar Atrophy (SCA) was “identified” from a MRI in 1990.   The SCA is an evolving situation, from stumbling, to walker, Read More…

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Patsy

Patsy Riggs

I had never heard of the word Ataxia and neither had my GP. My initial diagnosis didn’t take very long but I was not told Read More…

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Linda M

Linda Murrell

My name is Linda, and I have been dealing with SCA3 for 17 years. I worked in the medical field for over 20 years before Read More…

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