Skip to content

NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA)
 SIGN THE PETITION

SARA Scale

Los científicos desarrollan un nuevo enfoque para evaluar la Ataxia en casa

Escrito por Ziyang Zhao Editador por la Dra. Hayley McLoughlin Traducido por Ismael Araujo Aliaga Una aplicación para teléfonos inteligentes recientemente desarrollada permitirá a los pacientes evaluar la ataxia en casa.   Existe un problema interesante en la ciencia que a menudo queda eclipsado en la comunidad científica. No es tan llamativo ni Read More…

Measuring neurodegeneration in spinocerebellar ataxias

Written by Dr Hannah K Shorrock Edited by Dr. Maria do Carmo Costa Neurofilament light chain predicts cerebellar atrophy across multiple types of spinocerebellar ataxia A team led by Alexandra Durr at the Paris Brain Institute identified that the levels of neurofilament light chain (NfL) protein are higher in SCA1, Read More…

Snapshot: How do clinicians measure the severity of ataxia in patients?

Coordination of smooth and effective movements is essential in daily tasks, such as speaking or walking. The ability to successfully orchestrate these movements is commonly referred to as “motor coordination”. While SCA patients can generally initiate movements with their bodies, their ability to execute these in a smooth and precise Read More…

Translate »

Join the Ataxia community today!

Become a free member for exclusive content from NAF.