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Audience: Parent/Guardian

Hill Day

Posted on July 25, 2025

United Against Ataxia Hill Day Raising our voices for Ataxia on Capitol Hill. ADVOCACY ADVOCACY TOOLS LEGISLATIVE ISSUES UPCOMING EVENTS JOIN US >> 2026 United Against Ataxia Hill Day Join Read More…


Events

Posted on July 3, 2025

Advocacy Events Take action. Raise awarness. ADVOCACY ADVOCACY TOOLS LEGISLATIVE ISSUES NAF INITIATIVES JOIN US >> Advocacy events bring the Ataxia community together to push for progress. Whether you’re meeting Read More…


NAF

Posted on July 3, 2025

NAF Initiatives Advocacy efforts that we are currently leading or participating in. ADVOCACY ADVOCACY TOOLS LEGISLATIVE ISSUES UPCOMING EVENTS JOIN US >> Click on the title of any initiative to Read More…


Tools

Posted on July 3, 2025

Ataxia Tools Become an advocate. Your voice matters. ADVOCACY LEGISLATIVE ISSUES NAF INITIATIVES UPCOMING EVENTS JOIN US >> Your voice matters. Patients, families, and caregivers have the power to improve Read More…


Share

Posted on July 3, 2025

Share Your Story Your voice matters. Your story can drive change. ADVOCACY ADVOCACY TOOLS LEGISLATIVE ISSUES NAF INITIATIVES UPCOMING EVENTS JOIN US >> Personal stories are one of the most Read More…


Issues

Posted on July 3, 2025

Legislative Issues Staying up-to-date on policies that affect the Ataxia community. ADVOCACY ADVOCACY TOOLS NAF INITIATIVES UPCOMING EVENTS JOIN US >> The following are issues that NAF is following. Click Read More…


MSA

Posted on June 6, 2025

MSA Treatment Pipeline Tracking progress of the development of MSA therapies. Pipeline for MSA This is a visual tool created to show the progress of MSA therapies that are currently Read More…


SPG7

Posted on May 9, 2025

SPG7 A collection of resources for individuals and families affected by Spastic Paraplegia type 7 (SPG7). WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Spastic paraplegia type 7 (SPG7) Read More…


ARSACS

Posted on May 9, 2025

ARSACS A collection of resources for individuals and families affected by Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS). WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Autosomal Recessive Spastic Read More…


SCA50

Posted on May 9, 2025

SCA50 A collection of resources for individuals and families affected by Spinocerebellar Ataxia type 50 (SCA50) . WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Spinocerebellar Ataxia type 50 Read More…


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