My name is Ian C. Bouras. I love to play the guitar and produce music. I first noticed symptoms when I was struggling to play something on the guitar. I Read More…

I think the first time I realized something was different about my dad was when he was forced to quit his job. I was 6 years old. Over the next Read More…

Ataxia came to me as a question. More than 15 years ago and each year that passes more questions are added to my story. I have been diagnosed with SCA Read More…

My journey began many moons ago. Happily, my ataxia has progressed slowly, over 20 years. For a while, I could still walk unaided. Then I eventually … But I digress. Read More…

The National Ataxia Foundation serves as a constant reminder for so many that we are not alone on this journey. The network and support provided by the NAF have enabled Read More…

When Liesel was a baby I noticed her not meeting her milestones. Liesel’s Pediatrician watched her closely. At her 6 month checkup we made the decision to start therapy, but Read More…

From Riding a Harley Davidson to a Catrike -Ataxia is not who I am, it is what I have. I was diagnosed with Hereditary Friedreich Ataxia (FDRA) in August 1998. Read More…

It is a “Funny thing,” now looking back at what caused me to seek a diagnosis. Yeah, spending some quality time in jail caused me to get motivated to find Read More…

My name is Jane Jaffe. My daughter, Lisa, was diagnosed with Ataxia in July 2002. We were shocked when the neurologist told us our gorgeous, smart, funny, terrific daughter had Read More…

My name is Stephanie Leonard, and I have two sons, Ames and Asher. When they were babies, we started noticing they were delayed with milestones and didn’t take their first Read More…