*NEW* Ataxia treatment pipeline launched! It is a visual look at drug development progress. LEARN MORE!

National Ataxia Foundation


Month: June 2020

EL-PFDD Meeting

The Voice of the Patient Report (PDF) for Polyglutamine Ataxias and DRPLA is now available. This report summarizes information from the Externally-Led Patient Focused Drug Development (EL-PFDD) meeting we hosted on September 25, 2020.  We would like to offer our thanks to the patient panelists, phone callers, and individuals who submitted email comments. You bravely shared Read More…

NAF Statement on Racism and Social Injustice

We Condemn All Forms of Racism

We have been shaken, saddened, and angered by the death of George Floyd here in NAF’s hometown of Minneapolis. We have also been strengthened by the peaceful anti-racism protests that have swept the country, and the necessary conversation that is occurring. The National Ataxia Foundation condemns all forms of racism and social injustice. We are hopeful that this Read More…

What’s the Deal with Ataxia Research Right Now?

Guest Author: Tasha Kaiser, Clinical Research Coordinator, University of Michigan Hello, with a big friendly wave of the Michigan mitten! My name is Tasha Kaiser, and I am the Clinical Research Coordinator for the University of Michigan Ataxia studies. I know that so many of you in the Ataxia community have unrelenting questions about the Read More…

Certainty In Uncertain Times

Author: Joel Sutherland, Development Director Uncertain times? I don’t think so! Granted, we are not sure if summer camps will be open for the kids in the next several weeks. We are not sure when scheduled weddings will take place with more than 10 people in attendance or when family reunions will once again be Read More…

Translate »