NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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Collective Strength During my late thirties my loss of balance was apparent. That was over 35 years ago. By my early forties, I was diagnosed with Cerebellar Ataxia. Prior to Read More…
Virtual support group meetings will continue on through the spring months with several groups around the nation beginning to host in-person meetings and events. Read the latest support group meeting Read More…
We’re excited to announce that NAF will award more than $850,000 in Ataxia research grants this year! This year’s funded projects will support research on 8+ genetic forms of Ataxia, Read More…
DISCLAIMER: The information provided in this article is for informational use only. NAF encourages all readers to consult with their primary care provider, neurologist, or other healthcare provider about any Read More…
What Types of Ataxia Can Be Identified Through Genetic Testing? Genetic testing can identify the specific type of hereditary Ataxia you have, as Ataxia can be a symptom of various Read More…
How Do I Tell My Loved Ones About My Genetic Testing Results? The decision to share, or not share, your genetic test results with loved ones is your personal choice. Read More…
What Are the Most Common Ways to Give a DNA Sample? Since our DNA is in every single cell of our body, there are many ways to provide a DNA Read More…
What Should I Expect During the Genetic Testing Process? You may be referred to have genetic testing if you have problems with your balance or coordination, also called “Ataxia”, or Read More…
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