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Audience: Newly Diagnosed


Pedaling Back Against Ataxia

Posted on October 16, 2026

Written by Jacen Emerson Edited by Pragya Goel, PhD Regular stationary bike training improves ataxia symptoms within months according to a clinical trial.   Home cardio may outperform traditional balance Read More…


Rochelle

Hi, I’m Rochelle I am 60 years old mother of three adult children and grandmother to 3. All of my life even as a teenager I loved working with children. Read More…




New stem cell model for SCA1

Posted on September 24, 2026

Written by Jamie Hyde   Edited by Marija Cvetanovic, PhD “A new matched stem cell model gives SCA1 researchers a clearer way to study disease mechanisms and test potential treatments.” Using Read More…



Luís Frija

I’m 50 years old from Portugal and work in the contact center industry from home. My journey with Cerebellar Ataxia really began in 2018 when I received my diagnosis. For a long time, my main Read More…


Amir

My name is Amir Hossein Bagerzade. I am 26 years old, and for nearly nine years I have been living with a rare genetic disease. You may wonder why, after Read More…


Jacqueline Ambur

“So what we think you have is something called autoimmune cerebellar ataxia.” Cool. Cool. Cool- No idea what that is. Countless blood tests, a few MRIs and a couple hospital visits later looking Read More…


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