My story started about four years ago. It has been a long road. Finally on the 13th of August 25 I was diagnosed with Ataxia caused by a degenerative of my Cerebellum. I’m already using a walker in the house. Even with it I can’t walk more than about 30 feet. So if I’m going out anyway, I need to use my electric wheelchair.
When Were You Diagnosed? Which Type (If Known)?
I was diagnosed with Ataxia of Unknown Origin in August of 2025.
How Has Ataxia Impacted Your Life?
For me, the hardest thing is needing to have to depend on help from family and friends.
What is One Thing You’d Like the People to Know About Ataxia?
That it takes away your independence.
Share Your Advice – How Can Others Support Someone with Ataxia?
To be understanding and to let them do what they can before you step in to help.
How has NAF Helped You or Your Family?
My new here and still not sure how NAF can help. But I need to know that someone is willing to try.
Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
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