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Audience: Newly Diagnosed

What are Good Laboratory Practices (GLPs)?

Good Laboratory Practices (GLPs) are standards for nonclinical research studies. These standards must be met before the research data can be accepted and reviewed by a regulatory agency. A nonclinical study involves experiments to determine the safety of a product. But not in people! Nonclinical studies are performed before they are Read More…


Abdulrahman

Hello, I’m Abdulrahman – in the beginning I was shocked, but then I digested the news, my lifestyle and way of living really helped me in overcoming these hardships When Read More…


SPG4

Posted on June 3, 2026

Spastic Paraplegia Type 4 (SPG4) A collection of resources for individuals and families affected by Spastic paraplegia type 4 (SPG4). WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Spastic paraplegia type 4 (SPG4) is caused by Read More…



SCA17

Posted on May 29, 2026

SCA17 A collection of resources for individuals and families affected by SCA17. WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Spinocerebellar Ataxia type 17 (SCA17) is caused by a genetic mutation Read More…


Ben Williamson

Living and Dying with Spinocerebellar Ataxia Type 7: A Carer’s Perspective Affiliation: Husband and primary carer of patient with confirmed SCA7 (ATXN7 gene, 10/49 CAG repeats) Background Spinocerebellar Ataxia Type Read More…


Maitreyi Viswanathan

The video above is from Maitreyi’s personal YouTube channel, in which she discusses her experiences living with Ataxia. Mature topics are discussed, viewer discretion is advised. When Were You Diagnosed? Which Read More…


Ataxia with Vitamin B12 Deficiency

Posted on May 15, 2026

Ataxia with Vitamin B12 Deficiency A collection of resources for individuals and families affected by Ataxia with Vitamin B12 Deficiency. WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Long-term vitamin Read More…


Ataxia caused by Chronic Alcohol Use

Posted on May 15, 2026

Ataxia caused by Chronic Alcohol Use A collection of resources for individuals and families affected by Ataxia caused by chronic alcohol use. WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER Read More…


A-T

Posted on February 9, 2026

Ataxia-Telangiectasia (A-T) A collection of resources for individuals and families affected by Ataxia-Telangiectasia (A-T). WEBINARS RESEARCH INFORMATION RESEARCH NEWS BECOME A MEMBER >> Ataxia-telangiectasia (A-T) is caused by a genetic mutation that Read More…


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