Ataxia Hill Day is Wednesday, September 29th!  LEARN MORE

Blog

Summer Match

Summer Match Weekly Challenge

Let’s have some fun with the Summer Match Challenge! Thanks to an NAF supporter, we have a $100 VISA Gift Card to give away at the end of the month! We’ll start each week with a new challenge. Complete the challenge to receive an entry into the drawing for the Read More…

Summer Match

2021 Summer Match Challenge Kicks Off in June

We are excited to announce the return of the Summer Match Challenge! This event is always one of the most celebrated and popular fundraising activities of the year. The Michael and Patricia Clementz-Peterson Family Fund has again committed to matching all funds contributed up to $100,000! Their generosity and commitment Read More…

Sokol V. Todi, PhD

The Value of Attending AIM

Guest Author: Sokol Todi, PhD; Wayne State University I have been attending the Ataxia Investigators Meeting for nearly a decade. I was a junior faculty at the time of my first participation. I had worked in the Ataxia field for a few years and was looking for a scientific family Read More…

National Ataxia Foundation

2021 NAF Funded Research

At NAF, we support researchers in many ways, including our grant process. Research grants allow Ataxia investigators to request funding for their studies. Lay summaries are available below for the research grants we funded in 2021.  $655,000 Funded Overall 13 Research Studies Funded Research Seed Money Grants Research Seed Money Read More…

NAF Welcomes Four New Board Members

Above: February 2021 Board of Directors Zoom Meeting NAF recently had a few changes to our Board of Directors. Joe DeCrescenzo, Mike Leader, and Bill Sweeney will be retiring after many years of dedicated service. We thank them for their time, commitment, and passion for the Ataxia community! We are Read More…

Coronavirus Precautions for Ataxia Patients

Last updated: February 2021 The coronavirus (COVID-19) pandemic is affecting communities worldwide. The health and safety of the Ataxia community is a priority at NAF. We have consulted with our Medical and Research Advisory Board, infectious disease specialists, the World Health Organization, and the Centers for Disease Control and Prevention (CDC) Read More…

National Ataxia Foundation

NAF Joins Efforts with American Brain Coalition

NAF joined efforts spearheaded by the American Brain Coalition (ABC) to create a Neuroscience Center of Excellence at the FDA. We signed on to ABC’s letters to Congress. One letter asks Congresswoman DeGette and Congressman Upton to include the Neuroscience Center of Excellence in their Cures 2.0 legislation. The other letter urges Congressional Neuroscience Caucus co-chairs Read More…

National Ataxia Foundation

NAF Supports FARA’s Call to Action

Friedreich’s Ataxia Research Alliance (FARA) is encouraging Reata Pharmaceuticals to submit a New Drug Application (NDA) for Omaveloxolone, which recently completed a Phase III clinical trial as a treatment for Friedreich’s Ataxia (FA). FARA is also urging the Food and Drug Administration (FDA) to consider approving the NDA. FARA has Read More…

Translate »