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Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now.  LEARN MORE!

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NAF Announces 2024 Treasure Coast Walk N’ Roll

Walk N’ Roll events bring together individuals, families, and communities to spread awareness and support NAF’s mission of accelerating treatments and improving the lives of those living with Ataxia. The first 50 participants with a donation of $50 or more will get a free t-shirt! Minneapolis, MN (January 24, 2024) – Read More…

NAF Announces Core Values and Org Structure Changes

Our vision is clear: a world without Ataxia. Our mission guides the way that we pursue that vision: by accelerating the development of treatments and a cure while working to improve the lives of those living with Ataxia. As NAF grows, we wanted to identify the values that embody our Read More…

Top 5 Holiday Gift Ideas for Individuals with Ataxia

Guest Author: Day Undefined Welcome to Day Undefined’s Holiday Gift Guide for the National Ataxia Foundation – taking a fun twist on some of our favorite products. We hope it might spark ideas for useful, thoughtful, and accessible gifts for yourself or a loved one. Of course, while our team Read More…

NAF is Hiring a Clinical Research Coordinator

NAF is hiring a full time Clinical Research Coordinator. This person will be responsible for supporting the Clinical Operations Branch of the Research Department. This position primarily focuses on coordinating the NAF-sponsored Natural History Study titled Clinical Research Consortium for the Study of Cerebellar Ataxias (CRC-SCA). They will independently manage Read More…

Dr. Tee: The Journey of a Pioneer in Ataxia Research and Patient Care

While some begin their careers with a specific specialization – ready to focus on making a difference in a certain field – Dr. Tetsuo Ashizawa’s path to becoming an internationally acclaimed physician scientist specializing in Ataxia was anything but predetermined. Born in Tokyo in 1948, Dr. Tee, as he prefers Read More…

Ataxia Med News – October 2023

This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join as a professional member of NAF at www.ataxia.org/JoinNAF. Hello from NAF’s Clinical Services Team If you are new here, welcome! We hope you are new Read More…

Community Response Regarding Troriluzole Delivered to FDA

Last month we asked for your feedback about the FDA’s decision to refuse to file Biohaven’s NDA for troriluzole. More than 3,000 people stepped up to make their voices heard! 97% of respondents agree that the FDA should apply regulatory flexibility and accept the NDA filing for troriluzole for a Read More…

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