Patrick Schmoll

I was correctly diagnosed with genetic Spinal Cerebellar Ataxia in my early 30’s. Although I have been feeling the effects since my late teens (Not sure which SCA number).

As time passes, it’s becoming increasingly difficult to perform routine tasks. My legs and hands have become increasingly weaker. I have difficulty holding a pen, for instance, and have to use a walker. I have a mobility scooter to move around outside where I like to work in my yard a bit. As much as my disability will allow. Moving around in places that re not handicapped accessible is nearly impossible.

This disability has begun to affect my bladder control, which makes me very apprehensive about leaving the familiar environment of my home in case of an unplanned accident.

When Were You Diagnosed? Which Type (If Known)?

Correctly diagnosed in my early 30’s, but felling the effects in my late teens.

How Has Ataxia Impacted Your Life?

Everyday life has become very difficult, and my wife has become my caregiver so to speak. Helping with daily tasks that have become increasingly difficult.

What is One Thing You’d Like the People to Know About Ataxia?

I’d like them to be aware that getting around is extremely difficult. In my case, my balance is very close to “0”. Please be patient with us.

Share Your Advice – How Can Others Support Someone with Ataxia?

Emotional support is crucial, as there is no cure or effective treatment at the moment. Family members can help by being there and assisting with tasks the become increasingly difficult.

How Has NAF Helped You or Your Family?

My primary reasons for joining this group are to keep updated with any new treatments and to find support from people going through the same sort of thing. Any positive research results and emotional support is very important to me.

What is Your Ataxia Story?

As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.

Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.