When I turned 20, I started to notice something was different about me. I had a brain MRI, which showed that I probably had Ataxia. My mom and I went to the doctor for further examination, and he confirmed it. To be 100% sure, they performed genetic testing, which confirmed that I have Spinocerebellar Ataxia Type 2 (SCA2).
How Has Ataxia Impacted Your Life?
I’m learning to live with it, sometimes it is difficult because others think I’m drunk.
Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories
Ana
When I turned 20, I started to notice something was different about me. I had a brain MRI, which showed that I probably had Ataxia. Read More…
Tracy Britt
I am a Registered nurse who recently went on disability for Spinocerebellar Ataxia. My family tree is full of members with this same illness. I Read More…
Adam Zea
I have a beautiful wife and 3 grown kids. I have always been very active, running track and cross-country in high school and road races Read More…
Aude J
Note: Aude submitted her story in French. ChatGPT was used to translate her submission. The translation may not be accurate. We will include her submission Read More…
Sandi G
I am pleased to share some exciting news with you. I am a 67-year-old woman with a diagnosis of SCA8, and for the first time Read More…
Thomas Hudson
I’ve had balance and coordination issues my whole life – but I really started noticing it 10 years ago. I think the stress of myself Read More…
