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Ana

When I turned 20, I started to notice something was different about me. I had a brain MRI, which showed that I probably had Ataxia. My mom and I went to the doctor for further examination, and he confirmed it. To be 100% sure, they performed genetic testing, which confirmed that I have Spinocerebellar Ataxia Type 2 (SCA2).

How Has Ataxia Impacted Your Life?

 I’m learning to live with it, sometimes it is difficult because others think I’m drunk.

Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan. 

What is Your Ataxia Story?

As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.

Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community. 

Recent Member Stories

Linda Spencer

Our youngest son Connor was born on a beautiful fall morning. He was the youngest of our three children, so he had a sister who Read More…

Xuan Hong

Hello, I wanted to share with you the disease that has been in my family (my dad) : Spinocerebellar Ataxia Type 3, or for short Read More…

Laura

It all started with a change in my speech. I honestly thought I may have suffered a stroke whilst sleeping or something because it suddenly Read More…

Sandy Wilson

I was diagnosed with SCA1 in 2010, five years ago I had to stop work due to it becoming too hazardous, I lost my ability Read More…

Rochelle

Hi, I’m Rochelle I am 60 years old mother of three adult children and grandmother to 3. All of my life even as a teenager Read More…

William Tartaglia

My story started about four years ago. It has been a long road. Finally on the 13th of August 25 I was diagnosed with Ataxia Read More…

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