NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION

Help Us Urge the FDA to Act on Rare Disease Treatments

April 30, 2025

Ataxia doesn’t wait—and neither should treatment.

NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA). With an estimated 15,000 people in the U.S. affected by SCA, it’s time for decision-makers to understand the impact of this disease—and take action.

We need your help to raise awareness and show Congress and the FDA that our community is united in demanding progress.

Sign and share the petition: Urging the FDA to Consider Treatment Options for Rare Diseases, Including SCA

*Please note: Change.org will prompt you to donate while you are signing the petition. A donation is NOT required to sign. Donations do NOT go to NAF. Simply skip that step to sign without donating.

Your voice matters. Together, we can amplify the call for change and help bring hope to families living with Ataxia.

Thank you for your support and advocacy.