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Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW

Mental Health

Self-Care Strategies Every New Ataxia Caregiver Should Practice

Guest Author: Beverly Nelson Becoming a caregiver for someone with ataxia changes the rhythm of your days almost overnight. The mix of medical responsibilities, emotional support, and constant problem-solving can be both meaningful and exhausting. Without a plan for your own well-being, the role can quietly erode your health and Read More…

Living with Loss: Navigating Grief and Chronic Illness

Grief is universal—painful, sticky, and nonlinear. For those navigating chronic illnesses like Ataxia, grief often resurfaces repeatedly, in waves, each time a new change or loss occurs.  This article offers tools, stories, and models for understanding and healing through chronic illness-related grief.  Understanding Grief in Chronic Illness What Is Grief?  Read More…

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