NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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Guest Authors: Sheng-Han Kuo MD, Chen-Ya Yang, MD, MPH, and Geraldine Yu, PT, DPTTechnical Support: Tiffany Chen BS, Johns Hopkins University Ataxia is a neurologic disorder that affects people across Read More…
Facebook fundraisers make a big difference for us at NAF. More than $200,000 has been raised because people like you took the time to support our cause. Thank you so Read More…
Author: Kelsey Trace, NAF Research Associate It was an exciting couple of days in Minnesota when prominent Ataxia clinical researchers and research coordinators met in Minneapolis in September for the Read More…
Author: Lori Shogren, Community Program and Services Director NAF partnered with FARA and the EveryLife Foundation for Rare Diseases to bring International Ataxia Awareness Day to Capitol Hill. United Against Ataxia Hill Day happened on September 25, 2019. Read More…
Author: NAF Support Group Leaders St. Louis Ataxia Support Group Recognized on CBS News for IAAD The St Louis Ataxia Support Group and CBS Channel 4 celebrated International Ataxia Awareness Read More…
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