*NEW* Ataxia treatment pipeline launched! It is a visual look at drug development progress. LEARN MORE!

National Ataxia Foundation


Month: October 2019

11 Exercises for Ataxia Patients

Guest Authors: Sheng-Han Kuo MD, Chen-Ya Yang, MD, MPH, and Geraldine Yu, PT, DPTTechnical Support: Tiffany Chen BS, Johns Hopkins University Ataxia is a neurologic disorder that affects people across all ages. People living with Ataxia may experience problems including incoordination of movement, slurred speech, poor balance, and gait abnormalities. Neuromotor exercises and physical therapy Read More…

How to Host a Successful Facebook Fundraiser

FB Fundraiser Tips

Facebook fundraisers make a big difference for us at NAF. More than $200,000 has been raised because people like you took the time to support our cause. Thank you so much! Your efforts will directly impact the Ataxia community. The funds that you raise help us offer Ataxia research grants, provide educational programs for Ataxia Read More…

2019 Katie Campbell Clinical Trial Readiness Conference Held in Minneapolis

2019 CRC SCA Face To Face Mtg

Author: Kelsey Trace, NAF Research Associate It was an exciting couple of days in Minnesota when prominent Ataxia clinical researchers and research coordinators met in Minneapolis in September for the annual Katie Campbell Clinical Trial Readiness Conference. This conference focuses on the work of the Clinical Research Consortium for the Study of Cerebellar Ataxias (CRC-SCA). Read More…

NAF Seeks Support of a Resolution for National Ataxia Awareness Day

Author: Lori Shogren, Community Program and Services Director NAF partnered with FARA and the EveryLife Foundation for Rare Diseases to bring International Ataxia Awareness Day to Capitol Hill. United Against Ataxia Hill Day happened on September 25, 2019. We are so grateful for all the support in planning the day and will cherish the relationships that were built as a result. The Hill Read More…

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