The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE
The National Ataxia Foundation seeks a compassionate, experienced, and licensed clinical professional to serve as Community Services Manager (CSM). This role will develop and lead a national network of contracted Read More…
On October 21,2024 my life changed forever because my diagnosis of Ataxia. The neurologist said I had two options to go to Rochester Mayo or The U of M. I Read More…
Minneapolis, MN (September 25, 2025) – The National Ataxia Foundation (NAF) today announced the launch of The Science Guy: Back in the Lab for FA, a new educational campaign to Read More…
Guest Author: Beverly Nelson Becoming a caregiver for someone with ataxia changes the rhythm of your days almost overnight. The mix of medical responsibilities, emotional support, and constant problem-solving can Read More…
The first sign something was not right was in 2012, when I found I could not carry a cup of coffee across an open space without spilling it. It took Read More…
NAF is hiring a full time Regional Development Manager. This person will be responsible for generating revenue via traditional non-profit revenue streams including major gifts, recurring gifts, planned gifts, individual Read More…
Ataxia is a family problem. It affects the individual diagnosed of course, but encompasses the rest of the family as caregivers, and those who must wonder and wait if it Read More…
My name is Lisa Jockims. I am 56 years old and I live in Saskatoon, Saskatchewan Canada. I have been recently diagnosed with Ataxia Telangiectasia. Throughout my adulthood I have Read More…
