My name is Lisa Jockims. I am 56 years old and I live in Saskatoon, Saskatchewan Canada.
I have been recently diagnosed with Ataxia Telangiectasia. Throughout my adulthood I have had many challenges and struggles. I have had a form of Cancer in my leg , Breast Cancer, Brain Tumor, an ongoing condition called ITP or low platelets.
Recently I had genetic testing and it confirmed the Ataxia Telangiectasia.
I now have a lot of information that has been the root of all my troubles. Being diagnosed with Ataxia does bring to light a lot of answers as to why I have a lot less coordination, more falls than an average person and a fear of falling when walking. Stairs are becoming a challenge for me I am determined to work with physiotherapy to help my condition.
I have a lot of encouragement and hope when I discovered NAF. This honestly has given me a new outlook and I am so looking forward to connecting with others.
When Were You Diagnosed? Which Type (If Known)?
Ataxia Telangiectasia
Share Your Advice – How Can Others Support Someone with Ataxia?
Listen with understanding.
How has NAF Helped You or Your Family?
It has changed my outlook on my life. I don’t feel so alone.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories
Brian G
Back in October of 2024 I was managing a hotel restaurant and came down 2 steps and just kept going without the ability to stop. Read More…
Cynthia Thibodeaux
I spent 10 yrs with a Dr who thought I had MS. After a visit to Mayo clinic in MN, I was told no MS, Read More…
Marina Parker
Oh boy, where do I start? At the beginning I guess…following neck surgery I developed a 4cm abscess on my left prefrontal cortex. I had Read More…
Freyglee Borges
I am from Venezuela, South America, I am 24 years old and living a “normal life” studying at university. My Ataxia is quite rare. I Read More…
Cameron Dingerson
My name is Cameron Dingerson, and I have a rare form of spinocerebellar ataxia: SCA11. The impetus for me sharing my story is the upcoming Read More…
Valentina
Todo empezó a los 9 años cuando estaba en el colegio y la profesora y mi mamá se empezaron a dar cuenta que levantaba los Read More…
