My name is Lisa Jockims. I am 56 years old and I live in Saskatoon, Saskatchewan Canada.
I have been recently diagnosed with Ataxia Telangiectasia. Throughout my adulthood I have had many challenges and struggles. I have had a form of Cancer in my leg , Breast Cancer, Brain Tumor, an ongoing condition called ITP or low platelets.
Recently I had genetic testing and it confirmed the Ataxia Telangiectasia.
I now have a lot of information that has been the root of all my troubles. Being diagnosed with Ataxia does bring to light a lot of answers as to why I have a lot less coordination, more falls than an average person and a fear of falling when walking. Stairs are becoming a challenge for me I am determined to work with physiotherapy to help my condition.
I have a lot of encouragement and hope when I discovered NAF. This honestly has given me a new outlook and I am so looking forward to connecting with others.
When Were You Diagnosed? Which Type (If Known)?
Ataxia Telangiectasia
Share Your Advice – How Can Others Support Someone with Ataxia?
Listen with understanding.
How has NAF Helped You or Your Family?
It has changed my outlook on my life. I don’t feel so alone.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories
Maitreyi Viswanathan
http://youtu.be/sYccDzT25eY?si=f6GkonkY4FvsyFHy The video above is from Maitreyi’s personal YouTube channel, in which she discusses her experiences living with Ataxia. Mature topics are discussed, viewer discretion is Read More…
Ana
When I turned 20, I started to notice something was different about me. I had a brain MRI, which showed that I probably had Ataxia. Read More…
Tracy Britt
I am a Registered nurse who recently went on disability for Spinocerebellar Ataxia. My family tree is full of members with this same illness. I Read More…
Adam Zea
I have a beautiful wife and 3 grown kids. I have always been very active, running track and cross-country in high school and road races Read More…
Aude J
Note: Aude submitted her story in French. ChatGPT was used to translate her submission. The translation may not be accurate. We will include her submission Read More…
Sandi G
I am pleased to share some exciting news with you. I am a 67-year-old woman with a diagnosis of SCA8, and for the first time Read More…
