Bill Nye is back in his lab with NAF and Biogen—breaking down the science of Friedreich Ataxia in a new video series. WATCH NOW
Guest Author: Ellie Martin Physical therapy is good for rehabilitation. However, it can be straining on our muscles by the end of a session. Aquatic therapy is a way to help relax muscles while also providing the same benefits as land therapy. Aquatic therapy is described as a technique that Read More…
This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join as a professional member of NAF at www.ataxia.org/JoinNAF. Hello from NAF’s Clinical Services Team Happy summer, all! I am pleased to present the latest edition Read More…
Guest Author: Ellie Martin For those who participate in physical therapy, you might be aware that balance exercises are very helpful for those of us with Ataxia. Mayo Clinic says that balance exercises are especially important because they can help prevent falls and keep you independent. It can get boring Read More…
Guest Author: Ellie Martin Many people practice yoga for its long-lasting effects on the body. For people with limited mobility, it may be trickier to practice traditional yoga. Fortunately, chair yoga is a great option that provides the same benefits as traditional yoga. Chair yoga is accessible to anyone, even Read More…
Guest Author: Ellie Martin Dogs can be a human’s best friend. I mean, what’s not to love right? Dogs offer companionship, provide mental health support, and help us stay active. They can even help us with our daily tasks. According to the Americans with Disability Act (ADA), service dogs are Read More…
Have you ever wondered what goes on behind the scenes to bring a new drug to market? The process can take a long time. This is because of the many steps required. This is particularly true once human clinical trial participants are involved. In this article, we will explore the Read More…
Guest Author: Ellie Martin According to the World Health Organization, rehabilitation is defined as “a set of interventions designed to optimize functioning and reduce disability in individuals with health conditions in interaction with their environment.” Rehabilitation can help by making everyday activities more enjoyable. Using rehabilitation services is a way Read More…
This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join as a professional member of NAF at www.ataxia.org/JoinNAF. Hello from NAF’s Clinical Services Team Hello Ataxia Health Professionals, As we welcome Spring here in Minnesota, Read More…
According to the National Council on Independent Living, Centers for Independent Living (or CILs) are community-based, cross-disability, non-profit organizations that are designed and operated by people with disabilities. Kory Macy, a person with Ataxia who uses a wheelchair, explains what CILs are and why they may be helpful to people Read More…
Have you ever wanted to volunteer as an Ataxia research participant? Have you been unsure about how to find out about ongoing research studies? Have you wanted to help researchers better understand Ataxia? One answer to all three of these questions is a patient registry. A patient registry collects specific Read More…
