Freyglee Borges

I am from Venezuela, South America, I am 24 years old and living a “normal life” studying at university. My Ataxia is quite rare. I got sick 5 years ago, something viral that later turned into something neurological, many tests and still no exact diagnosis. I know it affected my cerebellum, my balance, my coordination, and my tone of voice. I am an only child, my parents do not have Ataxia. Due to the scarce information available in my country about Ataxia, obtaining help and a precise diagnosis has been very difficult, especially with the political and economic problems happening in Venezuela.

When Were You Diagnosed? Which Type (If Known)?

I don’t know yet what type of Ataxia I have.

How Has Ataxia Impacted Your Life?

Being so young, a quite active and lively life. My independence, wanting to do things on my own.

What is One Thing You’d Like the People to Know About Ataxia?

Having Ataxia is not easy at all. But every day it reminds you of how capable you can be and what your body can do again, things that we take for granted in our lives.

Share Your Advice – How Can Others Support Someone with Ataxia?

It’s a daily challenge, but having the certainty that everything will get better, I have done it. Life with Ataxia is quite peculiar, DO NOT PAY ATTENTION TO EVERYTHING THAT IS SAID ON THE INTERNET.

How has NAF Helped You or Your Family?

Since there is very little information about Ataxia in Venezuela, my parents and I have had to look for information and help on different websites from other parts of the world. Thanks to NAF, I have found more information and support that I am not alone in having Ataxia. Thank you, things are getting better. Faith, hope, and strength.

Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.

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