I have a history of Ataxia. On my father’s side, all aunts and uncles are affected, their offspring too. We all have Ataxia. I was just diagnosed in 2025. I feel ok, just scared. I’m praying for gene therapy or any medication.
When Were You Diagnosed? Which Type (If Known)?
Diagnosed 05/2025, SCA1
How Has Ataxia Impacted Your Life?
Totally frightened.
What is One Thing You’d Like the People to Know About Ataxia?
My kids are scared of course. I am not sure what’s in store for me.
Share Your Advice – How Can Others Support Someone with Ataxia?
100% physical therapy, Speech therapy, swallow therapy.
How has NAF Helped You or Your Family?
I just joined. Learning new information.
Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
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