Luís Frija

I’m 50 years old from Portugal and work in the contact center industry from home. My journey with Cerebellar Ataxia really began in 2018 when I received my diagnosis. For a long time, my main struggle was just staying on my feet. I had a lot of trouble with my balance, and because I tended to drag my feet when I walked, I ended up falling quite a few times. Eventually, I had to start using a walking stick to get around safely.

One of my biggest “climbable” hurdles is still going down stairs—that remains very difficult for me. I’m a big believer in doing my own research. I found out that table tennis was helping people with Parkinson’s, so I thought, “Why not try it for Ataxia?” It actually worked! My walking started to get much better. It wasn’t a total “cure,” but the improvement in my coordination was definitely there.

This past November (2025), my physiatrist gave me some new exercises to try at the gym. I’ve been putting in the work, but to be honest, I’m not feeling the results just yet. I think the cold weather might be slowing me down and making my muscles feel a bit stiffer than usual.

When Were You Diagnosed? Which Type (If Known)?

Neurologist at 2018 – Autosomal Recessive Spinocerebellar Ataxia type 16 (SCAR16)

How Has Ataxia Impacted Your Life?

It’s difficult in some ways, but allow me to have some well-being.

What is One Thing You’d Like the People to Know About Ataxia?

As with other health conditions, people need to support each other.

Share Your Advice – How Can Others Support Someone with Ataxia?

Nothing different from other conditions.

How has NAF Helped You or Your Family?

So far, knowing that NAF exists is fantastic and helps me look to the future.

Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.

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