I am 41 years old and currently live in Ashland, VA. I have SCA2. My Mom, Aunt, Grandfather and cousin all have or have had it as well.
I started to feel off earlier this year and knew what to get tested for because of my Mom. I can still trail run, ride a bike and work. But I have to admit they are getting more challenging.
I have found a lot of hope in joining the Ataxia community and look forward to the weekly webinars and meetings. I have also found that staying active and PT helps me both physically and mentally.
The best thing about this new diagnosis for me is the ability to focus on the things that really matter like family and friends.
I will continue to try and help with any studies I can and fundraising.
I still get down about my new situation but I just have to remember to think around the problem and find comfort in all the good that I have in my life.
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Sly F
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Shortly after returning from a once in a lifetime vacation to Turkey in 2010, at age 58, I began to experience odd neurological symptoms and profound exhaustion. I felt like Read More…
Neyveth Duarte
My name is Neyveth Duarte and my dad was officially diagnosed with Ataxia earlier this year. My dad is my hero and he is going through a really hard time Read More…
Adam Nelson
I grew up in a small & rural town of about 3,500 people in central Minnesota. I was raised in a blue-collar middle class home, with both loving parents and Read More…
Ataxia Connection Travel Grants Bring Over 50 Attendees to the 2025 Annual Ataxia Conference
Submitted by Theresa Nelson, Executive Director at Ataxia Connection It is an exciting opportunity for our organization, Ataxia Connection, to travel and attend the Annual Ataxia Conference (AAC) as a Read More…
