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Seth Johnson

I am 41 years old and currently live in Ashland, VA. I have SCA2. My Mom, Aunt, Grandfather and cousin all have or have had it as well.

I started to feel off earlier this year and knew what to get tested for because of my Mom. I can still trail run, ride a bike and work. But I have to admit they are getting more challenging.

I have found a lot of hope in joining the Ataxia community and look forward to the weekly webinars and meetings. I have also found that staying active and PT helps me both physically and mentally.

The best thing about this new diagnosis for me is the ability to focus on the things that really matter like family and friends.

I will continue to try and help with any studies I can and fundraising.

I still get down about my new situation but I just have to remember to think around the problem and find comfort in all the good that I have in my life.

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Gino U.

When I was 16, I was with my mom and her friend on an out of town trip. I suddenly became so dizzy that I couldn’t even stand up. I Read More…

Linda Spencer

Our youngest son Connor was born on a beautiful fall morning. He was the youngest of our three children, so he had a sister who was 7 and a brother Read More…

Xuan Hong

Hello, I wanted to share with you the disease that has been in my family (my dad) : Spinocerebellar Ataxia Type 3, or for short SCA3. This illness has more Read More…

Laura

It all started with a change in my speech. I honestly thought I may have suffered a stroke whilst sleeping or something because it suddenly became difficult to articulate certain Read More…

Sandy Wilson

I was diagnosed with SCA1 in 2010, five years ago I had to stop work due to it becoming too hazardous, I lost my ability to do everyday tasks like Read More…

Rochelle

Hi, I’m Rochelle I am 60 years old mother of three adult children and grandmother to 3. All of my life even as a teenager I loved working with children. Read More…

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