I am 41 years old and currently live in Ashland, VA. I have SCA2. My Mom, Aunt, Grandfather and cousin all have or have had it as well.
I started to feel off earlier this year and knew what to get tested for because of my Mom. I can still trail run, ride a bike and work. But I have to admit they are getting more challenging.
I have found a lot of hope in joining the Ataxia community and look forward to the weekly webinars and meetings. I have also found that staying active and PT helps me both physically and mentally.
The best thing about this new diagnosis for me is the ability to focus on the things that really matter like family and friends.
I will continue to try and help with any studies I can and fundraising.
I still get down about my new situation but I just have to remember to think around the problem and find comfort in all the good that I have in my life.
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Susan Harding
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Keith Heiken
I am 62 years young. I was diagnosed with SCA8 when I was 24. Dr. Byrd took a skin sample to help with other types of testing (at the time Read More…
Sarah Altis
It started about 12 years ago. My dad was diagnosed with Ataxia. I wasn’t really sure what that meant, but I spent the next several years watching his steady decline. Read More…
Bella
I’m Bella and from China, thanks to this platform so I could share my story here. My diagnosis was very easy, not that complicating. I went to the doctor, tell Read More…
