National Ataxia Foundation Partners with Biogen to Bring Bill Nye “the Science Guy” Back To the Lab With New Series About Friedreich Ataxia

September 25, 2025

Minneapolis, MN (September 25, 2025) – The National Ataxia Foundation (NAF) today announced the launch of The Science Guy: Back in the Lab for FA, a new educational campaign to raise awareness and understanding of Friedreich ataxia (FA), a rare, genetic disease. The campaign, in partnership with leading biotechnology company, Read More…

National Ataxia Foundation Hosts Congressional Briefing with Bill Nye, The Science Guy, to Raise Awareness of Ataxia and the Impact on Patients and their Families

November 19, 2024

Session focused on the importance of funding research and approving new treatments for rare diseases, especially those with no FDA-approved treatment options like Spinocerebellar Ataxia (SCA) Minneapolis, MN (November 19, 2024) – Today the National Ataxia Foundation (NAF) partnered with members of Congress to host an informational meeting for legislators, Read More…

Bill Nye The Science Guy Lends His Unique Voice to Raise Awareness of Rare Neurodegenerative Disease

September 25, 2024

The well-known science educator joins with the National Ataxia Foundation on campaign to build broad understanding of Ataxia, a progressive brain disease that impacts a person’s speech and movement. Minneapolis, MN (September 25, 2024) – Bill Nye, who has helped make science a part of pop culture for a generation Read More…

Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”

September 20, 2024

This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure. Minneapolis, MN (September 20, 2024) – The National Ataxia Foundation (NAF) and the Friedreich’s Ataxia Research Alliance (FARA) are pleased to announce that Congress has once again designated September 25 as National Ataxia Read More…

NAF Announces 2024 Treasure Coast Walk N’ Roll

January 24, 2024

Walk N’ Roll events bring together individuals, families, and communities to spread awareness and support NAF’s mission of accelerating treatments and improving the lives of those living with Ataxia. The first 50 participants with a donation of $50 or more will get a free t-shirt! Minneapolis, MN (January 24, 2024) – Read More…

NAF Announces Core Values and Org Structure Changes

January 16, 2024

Our vision is clear: a world without Ataxia. Our mission guides the way that we pursue that vision: by accelerating the development of treatments and a cure while working to improve the lives of those living with Ataxia. As NAF grows, we wanted to identify the values that embody our Read More…

NAF Calls on the FDA to Apply Regulatory Flexibility and Accept the NDA Filing for troriluzole

August 7, 2023

Thank you for submitting your comments for the FDA! Troriluzole, an experimental drug being developed by Biohaven, completed Phase 3 clinical trials last year. While the primary endpoint assessing benefit across all Spinocerebellar Ataxia (SCA) types was not met, Biohaven believes the results show benefit among participants with SCA Type 3 Read More…

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