NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Hi! My name is Sandy Kaptain. About 20 years ago I noticed I was having falls. Just walking around the neighborhood but also when on vacation when there were wet Read More…
Join NAF and our partners at FARA in advocating for Ataxia and rare disease related policies during our annual United Against Ataxia Hill Day on September 25th! Advocates will have Read More…
I have Spinocerebellar Ataxia type 2. Also known as SCA2. I was 47 years old when I was diagnosed. I already knew that I had it, because I have a Read More…
Guest Author: Liam Dougherty Navigating the world of accessible products can be a daunting journey, filled with trial and error. In this article, Liam shares his personal experiences and the Read More…
Guest Author: Linda Chase, Able Hire In today’s technology-driven world, the importance of tech in career development for individuals with disabilities, such as Ataxia, cannot be overstated. This article delves Read More…
Guest Author: Ellie Martin Many people practice yoga for its long-lasting effects on the body. For people with limited mobility, it may be trickier to practice traditional yoga. Fortunately, chair Read More…
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