I have Spinocerebellar Ataxia type 2. Also known as SCA2. I was 47 years old when I was diagnosed. I already knew that I had it, because I have a family history of it. My mom had it, her mother had it, my mom’s sisters and one brother all had this disease.

I am married with one daughter. I recently went back to school and received my medical billing certificate. Three years ago I noticed my stamina changed and the way I walked changed. I pointed it out to my doctor and he waited me to get tests done to see if I had neuropathy, since I am a type 2 diabetic and it took some time to get my blood sugar under control. But come to find out having neuropathy is one of the side effects of this disease. I was in denial for 3 years, and my mother told me to never get tested, just live and enjoy life. But I needed to know. So I went to my doctor and he suggested a neurologist. From there I found a genetics specialist. I am so grateful that my mom keep a medical general so when I got tested they knew exactly what to look for.

Two months later here I am. I have finally accepted my disease and embraced it. I am still able to get around, I just have to rest while cooking or washing the dishes. I no longer do my own laundry because I can’t carry the laundry basket downstairs anymore. But I love to do my nails and I love to crochet. I am even thinking about selling my crochet on Etsy. I am still working and doing my daily activities.