Amelia

I was diagnosed with Ataxia (Unknown) in October of 2024. I left the hospital after a bad fall in a wheelchair not knowing what my future would be like. As a very active person who loves to walk, hike, play etc. I was devastated. I spent three months in a wheelchair and thankfully I had the support of my partner. I was extremely motivated and I was using a walker by January 2025. I got a job!

Everything was going well until about April 2025 and I was back in a wheel chair until November 2025. I had lost my motivation. I was suicidal. My doctor had me on a bi-polar medication which was disastrous! I sat down and (I am an ex Kindergarten teacher) and made what I call a “Hope Board”. I wrote out everything that I wanted to happen in my life. Hope, Health, Family, Work, Love Etc.

Then I got to work. I applied for hundreds of jobs and had many interviews. I looked like I was showing up drunk. My nerves accerbated the situation. It was so embarrassing, but also very humbling. Watching how others react to my walker. Some tried to get me to carry the damn thing up the stairs. Finally I found a job. Things are starting to happen. My board is still up in my living room. Today, I still use my walker and walk like a drunkard but I am learning to cope. Some days are better than others!

When Were You Diagnosed? Which Type (If Known)?

October 2024

How Has Ataxia Impacted Your Life?

Everything has changed. Positively, I have a whole new outlook on life. People with struggles, people with mobility devices. My goal is to help our cause. I just got a job in HR at Acadia Pharmaceuticals. Acadia is known for many neurological medications.

What is One Thing You’d Like the People to Know About Ataxia?

We are not drunk.

Share Your Advice – How Can Others Support Someone with Ataxia?

Provide balance support.

Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.

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