NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
We’re thrilled to introduce some fresh faces joining our mission here at NAF! Meet our newest board member and the five staff who have joined our team this year. With diverse backgrounds, talents, and a shared passion for making a difference, these individuals bring unique perspectives and skill sets that Read More…
Ataxia is complex; the diverse symptoms it presents makes every individual’s experience uniquely challenging. As a person ages, determining whether changes are caused by Ataxia or unrelated causes can be difficult, especially when symptoms impact the way a person thinks and feels. It is important to understand Ataxia’s impact beyond Read More…
When Charlie Ruehl was in high school, his mom Susan recalls he would always miss the same step at the bottom of their staircase. She chalked it up to him being off-balance and in a hurry—after all, he was an athletic, teenage boy and he was always running off to Read More…
Hi, my name is Daniel Queirolo, I’m Brazilian, 39 years old, married to an incredible woman and with an equally incredible 3-year-old daughter. About 2 years ago, I suffered from burnout caused by a huge workload, combined with a toxic boss and a terrible work environment. I felt really bad. Read More…
Many people with Ataxia are interested in participating in clinical research, but are not sure where to start. It can be tricky to know where to start looking for information. Our Participate in Ataxia Research webpage is a good place to start. However, we often receive questions about how to Read More…
My unwanted guest arrived when I was conceived. He rode in on my DNA and set up residence in the part of my brain called the cerebellum. This is located in the lower back of the brain and controls the major muscles and coordination. He lived very quietly, in fact Read More…
Walk N’ Roll events bring together individuals, families, and communities to spread awareness and support NAF’s mission of accelerating treatments and improving the lives of those living with Ataxia. The first 50 participants with a donation of $50 or more will get a free t-shirt! Minneapolis, MN (January 24, 2024) – Read More…
Our vision is clear: a world without Ataxia. Our mission guides the way that we pursue that vision: by accelerating the development of treatments and a cure while working to improve the lives of those living with Ataxia. As NAF grows, we wanted to identify the values that embody our Read More…
The new year can be a time for reflection and anticipation. At NAF, it is especially true for a change to our Board of Directors this year. We bid a heartfelt farewell to two esteemed Board Members, Cindy De Mint and John Dwyer, who have generously dedicated their time and Read More…
It takes a long time to develop a new drug. Not to mention it can be very expensive. But why does it take so long and cost so much? In this article, we will be going through the five key steps in drug development to shed some light on this Read More…
