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Education

What Should I Consider Before Getting Genetic Testing?

What Should I Consider Before Getting Genetic Testing? There are many things to consider before having genetic testing done. Here are a few common questions to ask yourself, if you are considering genetic testing for Ataxia. Am I the best person to be tested first in my family? We always Read More…

What is the Typical Process of Getting Post-Test Genetic Counseling?

What is the Typical Process of Getting Post-Test Genetic Counseling? When your results are back, your genetic counselor will contact you to review them over the phone, via telemedicine, or in-person. You are encouraged to ask clarifying questions to make sure you understand your results fully. Your genetic counselor will Read More…

What is the Typical Process of Getting Pre-Test Genetic Counseling?

What is the Typical Process of Getting Pre-Test Genetic Counseling? You may be wondering what to expect once you have scheduled your genetic counseling appointment. The below process outlines a typical genetic counseling session: Plan: Your genetic counselor will first review the plan for the visit. This ensures the patient Read More…

Who Should Get Genetic Counseling and Testing for Ataxia?

Who Should Get Genetic Counseling and Testing for Ataxia? There are two scenarios where people should consider getting Ataxia genetic testing. This includes if you have been diagnosed with Ataxia or if a close relative has been diagnosed with Ataxia. Scenario 1: You Have Received an Ataxia Diagnosis You have Read More…

How Do I Get Genetic Counseling and Testing for Ataxia?

How Do I Get Genetic Counseling and Testing for Ataxia? Do you have a diagnosis of Ataxia but are not sure if there is a genetic cause for your symptoms? Some types of Ataxia have a genetic mutation causing your symptoms. Genetic counselors are medical professionals that help figure out Read More…

Protect Yourself from Scams on Social Media

The NAF Facebook Group was established as a support group and social network for people with Ataxia, including their families, friends, caregivers, and anyone affected by Ataxia. With any social network, there is a risk of encountering scammers and spammers. We’d like to provide you with some information about how Read More…

NAF is Piloting a Free Genetic Counseling and Testing Initiative

NAF is excited to announce that we are beginning a feasibility study of a program to remove barriers to genetic counseling and testing. Eligible participants will receive genetic counseling at no-cost to them. After counseling, if the participant and genetic counselor determine that testing is the right decision, genetic testing Read More…

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