NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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NAF is proud to feature Felicia Williams as a recipient of NAF’s 2020 Diverse Scientists in Ataxia Pre-Doctoral Research Fellowship. Felicia developed a new method to identify genes that suppress protein clumping. Bio: Felicia Williams graduated from the University of Georgia in 2019 where she studied genetics and biotechnology. Here Read More…
We’re excited to announce the launch of a search for NAF’s first Chief Scientific Officer. This exciting role is new for NAF and will be instrumental in shaping our research funding strategy and deepening our rapidly expanding partnerships in the pharmaceutical space. The Ataxia community is at a pivotal moment Read More…
NAF, FARA, and more than 100 volunteer advocates will come together to raise awareness about Ataxia and supporting legislation that directly impacts our community. The third United Against Ataxia Hill Day will be held on Wednesday, September 29, 2021. Ataxia advocates will speak to their Congressional Members to make the Read More…
NAF is committed to providing the resources to fund research needed to develop treatments and therapies for people with Ataxia. We fund research studies ranging from $35,000-$100,000 per study. We are accepting Letters of Intent for research grants through late September and early October on proposalCENTRAL. For more information visit www.ataxia.org/researcher-resources. If you Read More…
Author: Sue Hagen, Research Services Director In the 14 years that I have been on staff at the National Ataxia Foundation, I have heard many times that clinical trials for therapy development for Ataxia will start within the next 5 years. And I have seen the Ataxia community patiently and Read More…
Guest Author: Sam Kirton, NAF Board of Directors President Fighting Ataxia is a cause that is close to Sam Kirton’s heart. He lost several family members to the disease. He volunteers his time to help make sure that NAF continues to move boldly forward, championing efforts to accelerate development of Read More…
Let’s have some fun with the Summer Match Challenge! Thanks to an NAF supporter, we have a $100 VISA Gift Card to give away at the end of the month! We’ll start each week with a new challenge. Complete the challenge to receive an entry into the drawing for the Read More…
Author: Joel Sutherland, Director of Development Pictured above: Hikers in the 2021 Country Skies Extreme Hike for Ataxia The participants in the 2021 Country Skies Xtreme Hike were soaked and worn out as they did their best to deal with the wet conditions Mother Nature delivered on Saturday, April 24th Read More…
We are excited to announce the return of the Summer Match Challenge! This event is always one of the most celebrated and popular fundraising activities of the year. The Michael and Patricia Clementz-Peterson Family Fund has again committed to matching all funds contributed up to $100,000! Their generosity and commitment Read More…
Guest Author: Sokol Todi, PhD; Wayne State University I have been attending the Ataxia Investigators Meeting for nearly a decade. I was a junior faculty at the time of my first participation. I had worked in the Ataxia field for a few years and was looking for a scientific family Read More…
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