Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now. LEARN MORE!
NAF is now accepting applications for the Diverse Scientists in Ataxia Pre-Doctoral Research Fellowship. Applications must be submitted via proposalCentral by March 28, 2022. This award provides partial support for study and research and may be used to support pre-doctoral students who are pursuing dissertation research with an Ataxia-relevant theme. This is a two-year $50,000 Read More…
NAF is excited to announce that we are beginning a feasibility study of a program to remove barriers to genetic counseling and testing. Eligible participants will receive genetic counseling at no-cost to them. After counseling, if the participant and genetic counselor determine that testing is the right decision, genetic testing Read More…
The National Ataxia Foundation, a patient advocacy organization for a rare brain disease, is looking for an ambitious, detail-oriented, and fun-to-work-with Database Manager / Development Associate with a passion for helping others. This exciting role is new for NAF and will be instrumental in cultivating and expanding our donor and Read More…
After an extensive national search with many highly qualified candidates, we are excited to announce NAF’s very first Chief Scientific Officer! We’d like to extend a warm welcome to Lauren Moore, PhD. She stood out for her outstanding scientific knowledge, passion for serving the Ataxia community, and commitment to NAF’s Read More…
The health and safety of our community is our number one priority at NAF. We wanted to let you know that we are pivoting to a completely virtual 2022 Annual Ataxia Conference. We will no longer offer an in-person option. While we’re very disappointed that we do not get to Read More…
NAF is proud to feature Felicia Williams as a recipient of NAF’s 2020 Diverse Scientists in Ataxia Pre-Doctoral Research Fellowship. Felicia developed a new method to identify genes that suppress protein clumping. Bio: Felicia Williams graduated from the University of Georgia in 2019 where she studied genetics and biotechnology. Here Read More…
We’re excited to announce the launch of a search for NAF’s first Chief Scientific Officer. This exciting role is new for NAF and will be instrumental in shaping our research funding strategy and deepening our rapidly expanding partnerships in the pharmaceutical space. The Ataxia community is at a pivotal moment Read More…
NAF, FARA, and more than 100 volunteer advocates will come together to raise awareness about Ataxia and supporting legislation that directly impacts our community. The third United Against Ataxia Hill Day will be held on Wednesday, September 29, 2021. Ataxia advocates will speak to their Congressional Members to make the Read More…
NAF is committed to providing the resources to fund research needed to develop treatments and therapies for people with Ataxia. We fund research studies ranging from $35,000-$100,000 per study. We are accepting Letters of Intent for research grants through late September and early October on proposalCENTRAL. For more information visit www.ataxia.org/researcher-resources. If you Read More…
Author: Sue Hagen, Research Services Director In the 14 years that I have been on staff at the National Ataxia Foundation, I have heard many times that clinical trials for therapy development for Ataxia will start within the next 5 years. And I have seen the Ataxia community patiently and Read More…
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