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Research

NAF Announces First International Site for the CRC-SCA

We’re excited to announce the first international site for the Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA) natural history study! NAF is proud to partner with Ataxia Canada and the Centre hospitalier de l’Université de Montréal in Montreal, Québec to provide the Ataxia community with a new Read More…

National Ataxia Foundation

2022 NAF Funded Research

We’re excited to announce that NAF will award more than $850,000 in Ataxia research grants this year! This year’s funded projects will support research on 8+ genetic forms of Ataxia, from the most common to some of the rarest, as well as address shared disease pathways that could provide insights Read More…

All About Cerebral Spinal Fluid (CSF) Donation

DISCLAIMER: The information provided in this article is for informational use only. NAF encourages all readers to consult with their primary care provider, neurologist, or other healthcare provider about any advice mentioned. Deciding whether to donate cerebral spinal fluid (CSF) is a very personal, but impactful decision. In the video Read More…

NAF Hosts First Ataxia Clinical Training

We are thrilled to inform you of an NAF-sponsored annual program called Ataxia Clinical Training (ACT). ACT has been developed for clinician-scientists committed to improving the lives of patients and caregivers affected with Ataxia. There is a shortage of well-trained specialists who are knowledgeable about clinical and scientific aspects of Read More…

NAF is Accepting Applications for the Diverse Scientists Grant

NAF is now accepting applications for the Diverse Scientists in Ataxia Pre-Doctoral Research Fellowship. Applications must be submitted via proposalCentral by March 28, 2022. This award provides partial support for study and research and may be used to support pre-doctoral students who are pursuing dissertation research with an Ataxia-relevant theme. This is a two-year $50,000 Read More…

NAF is Piloting a Free Genetic Counseling and Testing Initiative

NAF is excited to announce that we are beginning a feasibility study of a program to remove barriers to genetic counseling and testing. Eligible participants will receive genetic counseling at no-cost to them. After counseling, if the participant and genetic counselor determine that testing is the right decision, genetic testing Read More…

How Do I Know if I Qualify for a Research Study

If you’ve been involved in research or read about research studies involving human participants, you’ve likely heard the terms “inclusion and exclusion criteria.” While the definitions of inclusion criteria and exclusion criteria seem fairly self-explanatory, it is important to understand some background on why these criteria are utilized. Let’s start Read More…

NAF Announces New CSO

After an extensive national search with many highly qualified candidates, we are excited to announce NAF’s very first Chief Scientific Officer! We’d like to extend a warm welcome to Lauren Moore, PhD. She stood out for her outstanding scientific knowledge, passion for serving the Ataxia community, and commitment to NAF’s Read More…

Researchers Explain the Impact of an NAF Grant

You know that we ask for your donations to help us fund more Ataxia research. You know that research grants are only possible because of generous gifts from people like you. You know that research is the key to finding effective treatments and a cure. But do you know why Read More…

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