Hi I am a 62-year-old Indian male living in New Delhi, India. My discovery of Ataxia was quite by accident. I suffer from Essential Tremors and the doctor suggested a gene test about 15 years back. The SCA 12 gene was dominant, but since it was more an ET diagnosis, I forgot about it. About 2 years back, I got an MRGFUS done. It is after that, that my ataxia increased. Currently, my gait ataxia has increased and I use a rollator to move around. I also have voice tremors, which have impacted my speech.
When Were You Diagnosed? Which Type (If Known)?
Father and grandmother. Gene testing was not known then.
How Has Ataxia Impacted Your Life?
Yes. I cant walk without a walker, dance or have independent movement. But I am a national level swimmer and swim effortlessly.
What is One Thing You’d Like the People to Know About Ataxia?
Go to a good neuro physio.
Share Your Advice – How Can Others Support Someone with Ataxia?
Patience.
What is Your Ataxia Story?
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